Organizations Filed Purposes:
THE BRAIN TUMOR NETWORK (BTN) IS DEDICATED TO PROVIDING COMPASSIONATE, PERSONALIZED NAVIGATION SERVICES TO BRAIN TUMOR PATIENTS AND CAREGIVERS. BTN ALSO ASSISTS HEALTHCARE PROVIDERS ACCESS CLINICAL TRIALS FOR THEIR PATIENTS. BTN WAS LAUNCHED IN LATE 2014 BY THE SONTAG FOUNDATION IN RESPONSE TO UNMET NAVIGATION NEEDS IDENTIFIED BY INDIVIDUALS AND FAMILY MEMBERS OF THOSE DIAGNOSED WITH PRIMARY BRAIN TUMORS.
PROVIDING FREE TREATMENT-RELATED NAVIGATION SERVICES TO BRAIN TUMOR PATIENTS IN THE USA.
PATIENT NAVIGATION SERVICES ARE THE CORE PROGRAM OF THE BRAIN TUMOR NETWORK (BTN). WITH THE SCARCITY OF PERSONALIZED TREATMENT INFORMATION AVAILABLE TO INDIVIDUALS IN THE USA DIAGNOSED WITH PRIMARY BRAIN TUMORS, BTN PROVIDES IMPORTANT INFORMATIONAL/NAVIGATION SERVICES TO PATIENTS, CAREGIVERS, AND CARE PROVIDERS. OUR TEAM OF NURSE NAVIGATORS AND SOCIAL WORKERS RESPOND TO ONLINE REQUESTS AND TELEPHONE INQUIRIES TO MEET PATIENTS/FAMILIES WHEREVER THEY ARE IN THEIR BRAIN TUMOR TREATMENT JOURNEY, AND TO HELP THEM GATHER THE INFORMATION THEY NEED TO EXPLORE THEIR NEXT STEPS WITH THEIR HEALTHCARE PROVIDERS. BTN HAS NAVIGATED 1,100 PATIENTS NATIONWIDE. SERVICES PROVIDED INCLUDE: CONDUCTING PERSONALIZED CLINICAL TRIAL SEARCHES, ASSISTANCE ASCERTAINING ELIGIBILITY FOR PARTICIPATION IN IDENTIFIED TRIALS, FACILITATING SECOND OPINIONS AND CONSULTATIONS, IDENTIFYING SPECIALTY PROVIDERS NEAR PATIENTS' HOME COMMUNITIES, AND OBTAINING AND REVIEWING PATIENT RECORDS. BTN DOES NOT PROVIDE MEDICAL ADVICE, BUT DOES PROVIDE PERSONALIZED TREATMENT-RELATED INFORMATION TO EQUIP PATIENTS AND FAMILY TO ENTER INTO DECISION-MAKING CONVERSATIONS WITH THEIR HEALTHCARE PROFESSIONALS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Kristie Naines | EXECUTIVE DIRECTOR | 40 | $116,340 |
| Kent C New | BOARD MEMBER | 1 | $12,150 |
| Clay B Tousey Iii | BOARD MEMBER | 1 | $0 |
| Katherine W Verble | DIRECTOR | 4 | $0 |
| Daniel M Ryan | BOARD MEMBER | 1 | $0 |
| Frederick B Sontag | PRESIDENT/BOARD MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001269349300505_public.xml