Organizations Filed Purposes:
Research for Myotubular Myopathy and other Congenital Myopathies, educational information, and research support.
Assistance to families with the purchase of needed medical equipment and being a resource for educating families worldwide on the care for these critically ill children as well as providing resources for them
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Alison Rockett-Frase | President | 55 | $64,168 |
| Jim Ervin | Director | 1 | $0 |
| Daryl Johnston | Director | 1 | $0 |
| Darren Blanton | Director | 2 | $0 |
| Angela Townshend | Director | 1 | $0 |
| Chad Hennings | Director | 1 | $0 |
| Paul Frase | Director | 1 | $0 |
| Lisa Nickerson | Vice president | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202043219349312344_public.xml