Organizations Filed Purposes:
Our mission is to educate women of childbearing age about congenital CMV. Our purpose is to prevent CMV infection in women of childbearing age, by:Empowering women, parents, families and local community networks through grassroots engagement to facilitate conversation and champion the cause.Delivering consistent, clear messaging and evidence-based data that aids in prevention, educates the public and increases its understanding of congenital CMV.Influencing CMV research priorities regarding CMV prevention, treatment and intervention.Advocating for a CMV vaccine.
Our program activities are focused around congenital CMV education and advocacy. We deliver education about congenital CMV to women of childbearing age through digital platforms, strategic partnerships, public health initiatives, and grassroots advocacy efforts. We advocate for the screening of newborns so we may properly evaluate and identify these babies to enroll them in the proper treatment as standard of care. Our programs include the CMV Community Alliance; education & outreach services targeting the women of childbearing age and general public, childcare providers, and healthcare providers; advocacy support; public health awareness mini grants; and early career research awards
Public Health Awareness: The National CMV Foundation creates and disseminates health content regarding prevention education during pregnancy, modes for transmission, possible outcomes, newborn screening, treatment options, and public health policies related to congenital cytomegalovirus (CMV) infection. We share vital health information with women of childbearing age and their families, child care providers, and health care professionals through various communication channels, including web, email marketing, social media, paid media, print, videos, toolkits, educational downloads, and continuing education activities.
Travel, Conferences and Community: Representatives of the National CMV Foundation travel throughout the United States and other countries promoting CMV awareness, advising on prevention education and newborn screening protocols, attending local community events, as well as presenting and sponsoring select clinical conferences and public health meetings.
Research Support: The National CMV Foundation funds young investigators and early career researchers interested in pursuing research on maternal or congenital CMV infection in areas including public health, epidemiology, diagnosis, treatment, outcomes, basic science, or vaccine development, to further its mission, promote maternal and newborn health, and reduce the rate of congenital CMV incidence in the United States
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Kristen Spytek | President | 40 | $75,000 |
| Mary Uran | Director | 5 | $0 |
| Megan Pesch | Director | 5 | $0 |
| Sallie Permar | Vice President | 5 | $0 |
| Zachary Rigoni | Treasurer | 5 | $0 |
| Albert Park | Director | 5 | $0 |
| Suresh Boppana | Director | 5 | $0 |
| Danielle Kinkel | Director | 5 | $0 |
| Sara Menlove Doutre | Secretary | 5 | $0 |
| John Spytek | Director | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202021149349301907_public.xml