Organizations Filed Purposes:
THE CORPORATION'S MISSION IS TO SERVE THE BLEEDING DISORDER COMMUNITY, FOCUSING ON THOSE AFFECTED BY SEVERE VON WILLBRAND DISEASE. THE CORPORATION'S GOALS ARE TO PROVIDE SUPPORT, EDUCATION AND CONNECTION FOR THESE PATIENTS AND FAMILIES, ALONG WITH SUPPORTING RESEARCH ENDEAVORS TO BENEFIT THIS COMMUNITY.
PROVIDED SUPPORT, EDUCATION AND CONNECTION FOR BLEEDING DISORDER PATIENTS AND THEIR FAMILIES
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jeanette Cesta | PRESIDENT/ D | 40 | $39,000 |
| Edward Kuebler | SEC/TREAS/DI | 10 | $15,000 |
| Christopher Walsh | DIRECTOR | 1 | $0 |
| Julian Friedman | DIRECTOR | 1 | $0 |
| Alice Arapshian | DIRECTOR | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202100409349301405_public.xml