Organizations Filed Purposes:
TO BRING FORTH UPLIFTING SUPPORT TO MEDICALLY FRAGILE CHILDREN AND THEIR FAMILIES
Uplifting Supports: In 2019, Rays for Rare provoded uplifting practical supports to medically fragile children and their families. Uplifitng supports included the following: weekly lawncare, monthly housecleaning, food at home and while the medically fragile children were in the hospital, snow removal, welcome boxes, and bereavement support. The number of medically fragile children supported by Rays for Rare increased by 55% from the beginning to the end of the year.
Family Events: In 2019, Rays for Rare served over 750 people total in family events. During the Year, Rays for Rare hosted family events every month. Events included the following: Movie day at theater with a room full of children in whellchairs and their families, Mother's Day event, Father's Day event, Summer "Heroes in Plain Sight" event, Fall Family event at miniature horse ranch, and a holiday "Merry and Bright" event. In caring for medically fragile children, families tend to become isolated in the home. Many families do not know any other families with medically fragile children. Family events enable a time to share experiences, have fun, and build community. Knowing that you are not alone on this journeymakes all the difference.
Education and awareness: Through our research, we have identified over 3,000 medically fragile children in the radius of our local children's hospital. Employees, board members, volunteers and community advocates provided education and awareness to the need of pedriatic palliative care. Our local children's hospital started their first pediatric palliative care program during 2019 and Rays for Rare sits on the committee to help guide, educate, and share awareness of the children we serve. We provided community education and awareness during the year through a series of storytelling videos sharing our families' journeys, speaking engagements, events and media coverage.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Megan Schomer | President | 40 | $40,000 |
| Kendra Tietz | Secretary | 2 | $0 |
| Alissa Aldrich | Treasurer | 10 | $0 |
| Zac Erekson | Director | 2 | $0 |
| Ben Godfrey | Director | 2 | $0 |
| Corey Schomer | Director | 3 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033129349300618_public.xml