UNITED CEREBRAL PALSY OF RHODE ISLAND INC
200 Main Street 210, Pawtucket, RI 02860 www.ucpri.org

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Organizations Filed Purposes: The mission of United Cerebral Palsy of Rhode Island is to "advance the independence, productivity and full citizenship of individuals with cerebral palsy and other disabilities." This mission is accomplished in part through the provision of highly individualized supports designed to enhance each individuals abilities, affording them the opportunity to fully participate in the community of their choice.

The Support Living Program provides in-home and community-based services to people living on their own or in small group situations. Supports and services vary dependent upon the needs of the individual and their living situation. These supports range from personal care to assisting people in building relationships within their community. Assistance with medical needs, personal care, community integration, medication administration and finances is also available. The frequency of supports is based upon the needs of the person and the assigned funding level. Support hours vary from 10 hours per week to 24 hours per day, seven days per week. The individuals supported determine the schedule and the types of services provided. UCPRI sponsors and supports individuals living in two HUD financed apartments complexes, one in Cranston and one in Johnston. Other people live in a variety of settings in the greater Providence area. The Family Support Program provides a wide range of in-home and community based supports. The types of supports are dependent upon the persons needs and the family desires. These supports include community integration, teaching daily living skills and social skills. Family with elderly parents or care givers may no longer be able to provide personal care and staff can provide the assistance required. Staff provide supports that allow the person to continue to reside in the family home. Supports can also include community integration and vocational assistance. The Family Support program was affected by COVID19. Families were given the opportunity to suspend services and most chose to do so. As of January 1, 2021, most families have decided to continue to suspend services. Day Supports are provided in both one and one and small group formats. Again, the number of support hours available to the person is based upon funding, shared hours and the persons needs. Programming includes, but is not limited to, daily living skills, basic adult education, community integration and socialization skills. These groups provide people the opportunity to explore their local communities, and socialize with others. Community activities have expanded to include classes and art programs. People continue to develop relationships within the community. They also bring a wide range of educational opportunities to people. This includes current affairs, exercise programs, music programs, and guest speakers. The Day Program was affected by COVID19. All of UCPRIs day activities that included groups were suspended. Depending upon the prevalence of COVID19 people did individual community based activities, unless the state was on pause or shut down. The program was expanded to include the people supported residentially whose day programs were suspended. These people participated in individual activities or with a roommate, when possible. As of 12/31/2020, none of the large day programs have reopened.UCPRI offers an Adaptive Arts Program in different formats and localities. The first is community based and is offered to at the Main Office. Individuals already supported by UCPRI and people from the community participate in adaptive art classes in three different classes. The second format occurs in the Slater Hospital System at both the Zambarano and Cranston campuses. In both formats different mediums of artist expression are explored and people have the opportunity to sell their work at different sales and shows through out the year. Artists benefit from increased self-esteem by creating and selling their work. The benefits of a expression in a hospital setting are well documented and are seen in the patients in the Slater Hospital Program. In addition UCPRI coordinates music and pet therapies at the local hospitals. The benefits of both therapies are well documented. Once again the program has been affected by COVID19. The community and hospital based art programs have been suspended. The community based programs are investing on-line trainings. The hospital based program reopened for a short time, but was suspended again when the rate of infection increased.

Currently Children and Family Services (CFS) offers the following services: 1) Home based Therapeutic Services (HBTS), 2) Personal Assistance and Support Services (PASS), 3) Enhanced Outpatient Services (EOS), 4) Outpatient Therapy, 5) Social Skills GroupsOur HBTS program is family-centered and our treatment philosophy is strength-based. The program continues the tradition of this agency of helping people with disabilities live in the least restrictive, most integrated setting possible. Family-centered service delivery sees the family as the unit of attention and organizes assistance in a collaborative fashion, taking into account the individual familys wishes, strengths, and needs. A clinician designs the treatment plan with the family and oversees the implementation of the plan in the home. A psychologist, speech therapist, and physical therapist provide consultation as needed. Parent participation is essential to maximize therapeutic effectiveness. Our program utilizes a social-emotional-developmental perspective and draws on the following therapeutic models: Dan Seigels Whole Brained Child, Floortime, Social Thinking, and RDI. A direct care professional works 1:1 with the child in their home and other community settings. Services focus on helping children with disabilities improve communication, social skills, coping skills, and daily living skills. They enhance a childs ability to participate in their family and community. UCP currently serves about 50 children in this program. The PASS program is a parent driven program. Parents act as a family supervisor for the direct care worker, which allows families to have greater choice and control over all aspects of service provision. The agency offers a supporting role to promote a childs ability to reach their full potential in 3 main areas: ability to accomplish essential activities of daily life; ability to make self-preserving decisions; ability to participate in social roles and social settings. The agency provides a clinician to help the parents develop their plan and provide consultation to parents regarding how to implement goals. UCP currently serves about 90 children in this program. Enhanced Outpatient Services (EOS) is an insurance funded program. UCP currently has a contract with Neighborhood Health Plan and United Behavioral Health Community. The program provides intense short-term, home based services to children with developmental disabilities and behavioral disorders who are either being discharged from a psychiatric hospital or who are at risk of being hospitalized. EOS provides family services which allow children to leave the hospital sooner and stay at home. Services are designed to meet each individual child and familys needs and may include family and individual counseling, direct 1:1 treatment in the home, and community integration with the primary goal being stabilization and prevention of re-hospitalization. We range from 15-20 cases at a time in this program.Our outpatient therapy office provides psychotherapy to children with special needs. Many outpatient therapists lack the necessary skills and an understanding of the developmental disability community to be able to provide a child with a disability with effective outpatient therapy services. Outpatient therapy is a valuable service for children stepping down from more intensive services such as EOS or as an adjunct to less therapeutic services such as PASS. UCP provides outpatient services primarily at the main office. This program is small and the number of individuals vary who are participating but is not usually greater than 20.Social Skills groups allow children with disabilities to have an opportunity to socialize with peers and gain practice in managing the complex nature of social interactions that most of us take for granted. Groups are designed based on age, interests, and abilities. The groups act as a stepping stone for children with disabilities to be able to actively participate in their own communities. We develop social skills groups based on need and numbers.

UCPRI offers an Adaptive Arts Program in different formats and localities. The first is community based and is offered at the Main Office. Individuals already supported by UCPRI and people from the community participate in adaptive art classes in three different classes. The second format occurs in the Slater Hospital System at both the Zambarano and Cranston campuses. In both formats, different mediums of artist expression are explored and people have the opportunity to sell their work at different sales and shows throughout the year. Artists benefit from increased self-esteem by creating and selling their work. The benefits of an expression in a hospital setting are well documented and are seen in the patients in the Slater Hospital Program. In addition UCPRI coordinates music and pet therapies at the local hospitals. The benefits of both therapies are well documented.

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