Organizations Filed Purposes:
PUBLIC AWARENESS OF ALS DISEASE AND PATIENT AND FAMILY SUPPORT
THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION CHAPTER OF RI REACHED MORE THAN 300 PATIENTS AND PATIENT'S FAMILIES THROUGH INFORMATION AND REFERRALS, HOME VISITS, SUPPORT GROUPS AS WELL AS PROVIDING EQUIPMENT LOANS, HANDICAPPED TRANSPORTION AND RESPITE CARE AT NO COST TO THE PATIENT. OUR CHAPTER ALSO FUNDS AN ALS SPECIFIC MULTI-DISCIPLINARY MEDICAL CLINIC THAT PROVIDES THE SERVICES IN THE AREA OF NEUROLOGY, PULMONOLOGY, PHYISICAL, OCCUPATIONAL AND SPEECH THERAPY AND NUTRITION IN ONE LOCATION.
THERE ARE NUMEROUS PROGRAMS THAT SUPPORT PROFESSIONAL AND PUBLIC AWARENESS OUTREACH. ALS AWARENESS DAY IS HELD ANNUALLY AT THE RHODE ISLAND STATE HOUSE DURING MAY. WHILE THIS PROGRAM IS ATTENDED BY OUR CONSTITUENTS, THERE IS ALSO A GREATER OUTREACH TO ANY MEMBERS OF THE GENERAL PUBLIC THAT ARE AT THE STATE HOUSE ON THAT DAY. THE ANNUAL ALS SYMPOSIUM INCLUDES SPEAKERS WHO PROVIDE ALS RESEARCH UPDATES AND GENERAL COPING SKILLS IN DEALING WITH THE DEVASTATION OF AN ALS DIAGNOSIS. THESE PROGRAMS ARE COMMUNICATED BY MAILINGS, SOCIAL MEDIA AND OPUR WEBSITE TO OVER 1,200 CONSTITUENTS INCLUDING PATIENTS, FAMILIES, CAREGIVERS, MEDICAL PROFESSIONALS AND SUPPORTERS. WE ALSO CONDUCT INSERVICE PROGRAMS TO EDUCATE MEDICAL STAFF ABOUT DEALING WITH ALS PATIENTS AT HOSPICE AND OTHER CARE FACILITIES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Nancy Feroldi | EXECUTIVE DIRECTOR | 40 | $28,678 |
| Craig Stenning | BOARD MEMBER | 1 | $0 |
| John Soucy | BOARD MEMBER | 1 | $0 |
| Jeff Ramos | BOARD MEMBER | 1 | $0 |
| R Andrew Pelletier Esq | BOARD MEMBER | 1 | $0 |
| Madeline Parmenter | BOARD MEMBER | 1 | $0 |
| Terrance Martiesian Esq | BOARD MEMBER | 1 | $0 |
| Kristen Madonna | BOARD MEMBER | 1 | $0 |
| Beatrice Lanzi | BOARD MEMBER | 1 | $0 |
| Susan Henrikson | BOARD MEMBER | 1 | $0 |
| Carol M Flanagan | BOARD MEMBER | 1 | $0 |
| Lauren Fatse | BOARD MEMBER | 1 | $0 |
| Joseph Deangelis Esq | BOARD MEMBER | 1 | $0 |
| Gonzalo A Cuervo | BOARD MEMBER | 1 | $0 |
| Matthew Cate | BOARD MEMBER | 1 | $0 |
| Richard Hentz | BOR VOTING REPRESENTATIVE | 1 | $0 |
| Kenneth F Mcgunagle Esq | PRESIDENT EMERITUS | 1 | $0 |
| Dr Judith A Pratt | INTERIM SECRETARY | 1 | $0 |
| John Finnerty | TREASURER | 1 | $0 |
| Pjprokop | 2ND VICE PRESIDENT | 1 | $0 |
| Thomas May Jr | 1ST VICE PRESIDENT | 1 | $0 |
| John R Pagliarini | PRESIDENT | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202120199349300502_public.xml