Organizations Filed Purposes:
TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI.
EDUCATION AND SUPPORT FOR THOSE WITH NEUROFIBROMATOSIS.
RESEARCH/CLINICS/IMPROVED CARE NEUROFIBROMATOSIS MIDWEST PROVIDES DIRECT GRANTS FOR RESEARCH AND RESEARCH SUPPORT. WE ALSO WORK WITH CLINICS IN OUR REGION TO IMPROVE CARE AND ACCESS TO CARE. ADDITIONALLY, WE WORK WITH THE NF COMMUNITY AND MANY OTHER RESOURCES ON ADDITIONAL PROGRAMS OR INITIATIVES TO IMPROVE THE QUALITY OF LIFE AND CARE FOR NF PATIENTS AND THEIR FAMILIES.
SUPPORT/EDUCATION/AWARENESS NEUROFIBROMATOSIS MIDWEST PROVIDES EDUCATION TO INDIVIDUALS AND FAMILIES WITH NEUROFIBROMATOSIS, TO THE MEDICAL COMMUNITY AND TO THE PUBLIC THROUGH AN ANNUAL SYMPOSIUM; SMALLER LOCAL MEETINGS; AND PRINTED AND ONLINE MATERIALS. WE PROVIDE FREE PACKETS OF INFORMATION TO NEWLY DIAGNOSED FAMILIES AND PHONE AND ONLINE SUPPORT. AN ANNUAL GRANT IS PROVIDED TO SEND CHILDREN WITH NF TO CAMP. WE ALSO PROVIDE MATERIALS AND OPPORTUNITIES TO RAISE AWARENESS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Lesli Wegner | BOARD MEMBER | 1 | $0 |
| Peter Oswald Sr | VICE CHAIR | 1 | $0 |
| Gail Mavrogenes | BOARD MEMBER | 1 | $0 |
| Dena Hasselberg | SECRETARY | 1 | $0 |
| Diana Haberkamp | EXECUTIVE DI | 40 | $0 |
| Denise Dulceak | BOARD CHAIR | 10 | $0 |
| Gordon Cummings | TREASURER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202140409349300424_public.xml