Organizations Filed Purposes:
The organization assists hemophiliacs and their families to meet their physical, emotional and financial needs for treatment and care.
Education - the organization provides several education programs throughout the year which support comprehensive and medical care. The organization publishes a newsletter three times a year that reinforces the issues presented in specific educational presentations which includes potential resources for hemophiliacs to utilize.
Summer Camp - the organization conducts an annual summer camp for youths with hemophilia and related diseases.
Advocacy and general programs - the organization's programs include on-going training for the bleeding disorder community on self-advocacy and awareness on critical issues; meeting with state legislators and administrators to develop partnerships that support bleeding disorders; and participation on healthcare consortiums that share common interest with the organization.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Robert P Robinson | Executive Director | 40 | $96,967 |
| Baldomero Depaz | Director | 1 | $0 |
| Nichelle Stigger | Director | 1 | $0 |
| Brent Page | Director | 1 | $0 |
| Taylor Mills | Director | 1 | $0 |
| Nyzera Fleming | Secretary | 1 | $0 |
| Shanna Garcia | Treasurer | 1 | $0 |
| Mike Towner | President | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202042379349301169_public.xml