Organizations Filed Purposes:
THE FOUNDATION FOR SARCOIDOSIS RESEARCH IS THE NATION'S LEADING NONPROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR THIS DISEASE AND TO IMPROVING CARE FOR SARCOIDOSIS PATIENTS. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $3 MILLION IN SARCOIDOSIS-SPECIFIC RESEARCH EFFORTS AND HAS WORKED DILIGENTLY TO PROVIDE RESOURCES TO THOUSANDS.
DEDICATED TO IMPROVING CARE FOR SARCOIDSIS PATIENTS AND TO FINDING A CURE FOR THIS DISEASE.
EDUCATION AND AWARENESS - IN 2019, FSR AWARENESS AND EDUCATION PROGRAMS PROVIDED OVER 40,000 PATIENTS WITH UP TO DATE, EVIDENCED BASED MATERIALS AS WELL AS SUPPORTING PATIENTS AROUND THE GLOBE WITH RESOURCES, ONLINE TOOLS, AND COMMUNICATION AND NETWORKING FORUMS. OVER 1,000 PATIENTS AND CAREGIVERS ATTENDED FSR'S 9 PATIENT CONFERENCES HELD ACROSS NORTH AMERICA. 38 STATE AND 46 LOCAL GOVERNMENTS AWARDED PROCLAMATIONS RECOGNIZING APRIL AS SARCOIDOSIS AWARENESS MONTH. OVER 1,900 INDIVIDUALS JOINED TEAM KISS DURING APRIL, INCLUDING VIRTUAL WALKERS, FUNDRAISERS, AND SATELLITE WALK PARTICIPANTS. OVER 87 LANDMARKS IN 2 COUNTRIES WERE ILLUMINATED PURPLE ON WORLD SARCOIDOSIS DAY (#LITFORSARC) INCLUDING ONE WORLD TRADE CENTER. 72 AMBASSADORS ATTENDED A TRAINING RETREAT IN WASHINGTON DC, PREPARING THEM TO SPREAD AWARENESS, EDUCATION, AND SUPPORT THROUGHOUT THE COUNTRY. 60 PATIENT SUPPORT GROUPS WERE FACILITATED BY FSR AMBASSADORS THROUGHOUT THE YEAR AND 32 LOCAL AND NATIONAL SPEAKING ENGAGEMENTS WERE CONDUCTED BY FSR SARCOIDOSIS AMBASSADORS.
RESEARCH - IN 2019, THE FSR FELLOWSHIP GRANT PROGRAM CONTINUED TO FUND 4 FELLOWS INTO THEIR SECOND AND FINAL YEAR OF FELLOWSHIP WORK AND SARCOIDOSIS RESEARCH. FSR'S SMALL GRANT PROGRAM FOCUSES ON AWARDING FUNDS TO NEW OR EARLY STAGE RESEARCH ON SARCOIDOSIS. IN 2019, $50,000 WAS PROVIDED TO SMALL GRANT AWARDEES. FSR'S CLINICAL STUDIES NETWORK (CSN) AND SARCONNECT PROGRAMS CONTINUED TO ENGAGE AND PARTNER WITH PHARMACEUTICAL COMPANIES THROUGH PATIENT OUTREACH AND RECRUITMENT FOR LARGE MULTI- CENTER TRIALS. BOTH PROGRAMS HELP CARRY OUT MULTIPLE STUDIES WITH FOCUS IN CARDIAC AND PULMONARY SARCOIDOSIS. IN ADDITION, 400 SURVEYS WERE COLLECTED TO ADVANCE UNDERSTANDING OF ATTITUDES TOWARD RESEARCH FROM POPULATIONS TRADITIONALLY UNDERREPRESENTED IN RESEARCH AND CLINICAL TRIALS. FSR CONTINUED GROWING THE PATIENT REGISTRY AND MADE SIGNIFICANT PROGRESS ON THE SCOUT ENDPOINTS PROJECT, IN ADDITION TO PROVIDING SERVICES AND SUPPORT TO ADVANCE SARCOIDOSIS RESEARCH AND THE MISSION OF THE ORGANIZATION.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Ginger Spitzer | EXECUTIVE DIRECTOR | 40 | $114,809 |
| Daniel Culver | DIRECTOR | 1 | $10,000 |
| Louise M Perkins | DIRECTOR | 1 | $0 |
| Azmi Nabulsi | DIRECTOR | 1 | $0 |
| Craig Lipset | DIRECTOR | 1 | $0 |
| Mary Cobb | DIRECTOR | 1 | $0 |
| Mary Ellen Carroll | DIRECTOR | 1 | $0 |
| Jim Davis | DIRECTOR | 1 | $0 |
| Kirk Allen | DIRECTOR | 1 | $0 |
| Louie Hondros | TREASURER | 5 | $0 |
| Leslie Serchuck | VICE PRESIDENT | 5 | $0 |
| Reading Wilson | PRESIDENT | 10 | $0 |
| Andrea Wilson | CHAIRWOMAN | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003189349308020_public.xml