Organizations Filed Purposes:
AN ORGANIZATION THAT WORKS TO IMPROVE THE QUALITY OF LIFE OF CHILDREN, ADULTS, AND FAMILIES LIVING WITH SPINA BIFIDA, A LIFELONG NEUROLOGICAL CONDITION THAT AFFECTS THE SPINE AND IS USUALLY APPARENT AT BIRTH. ISBA WORKS TO ACCOMPLISH ITS MISSION WITH A THREE-PART PROGRAM STRATEGY BELOW.
WORKS TO IMPROVE THE QUALITY OF LIFE OF CHILDREN, ADULTS AND FAMILIES LIVING WITH SPINA BIFIDA.
PROMOTE SKILLS DEVELOPMENT AND INDEPENDENCE.ISBA'S ABLE SAVERS PROGRAM LAUNCHED IN 2018 TO PROMOTE WORKFORCE DEVELOPMENT AMONG ADULTS WITH SPINA BIFIDA AND TO PUBLICIZE ABLE ACCOUNTS, WHICH HELP PEOPLE WITH DISABILITIES TO SAVE WHILE PRESERVING THEIR SSI AND MEDICAID.WITH GENEROUS IN-KIND SUPPORT FROM STATEWIDE KIWANIS CLUBS AND THE SHIRLEY RYAN ABILITYLAB, ISBA HELD ITS FOURTH ANNUAL GOBABYGO WORKSHOP. OVER FOUR YEARS, 52 CHILDREN HAVE RECEIVED CUSTOM ELECTRIC RIDE-ON CARS TO EMPOWER INDEPENDENT MOBILITY. GOBABYGO IS A PROGRAM OF THE UNIVERSITY OF DELAWARE.ISBA IS PROUD TO BE IN ASSOCIATION WITH THE YMCA OF METRO CHICAGO IN PROVIDING CAMP INDEPENDENCE EXPERIENCES FOR CHILDREN, TEENS, AND ADULTS. THROUGH PROGRAMMING AND EVALUATION CONDUCTED BY THE LOYOLA UNIVERSITY CHICAGO PSYCHOLOGY DEPARTMENT, PARENTS AND CAMPERS REPORT IMPROVEMENTS IN CAMPERS' GOAL ATTAINMENT, MANAGEMENT OF HEALTH-RELATED SELF-CARE, AND INDEPENDENCE.
IMPROVE FAMILY RESILIENCE AND ACCESS TO RESOURCES THROUGH OUTREACH, EDUCATION ANDADVOCACY.ISBA'S COMMUNITY-CLINIC CONNECTION PROGRAM SERVES CHILDREN, ADULTS, AND FAMILIES LIVING WITH SPINA BIFIDA. THE PROGRAM USES CLINIC OUTREACH, SOCIAL WORKERS, AND COMMUNITY EVENTS TO:IDENTIFY RESOURCE NEEDS OF INDIVIDUALS/FAMILIES AND REFER THEM TO APPROPRIATE SERVICES;SUPPORT AND IMPROVE FAMILY RESILIENCE BY INCREASING SOCIAL CONNECTEDNESS AND REDUCING STRESS AND ISOLATION; ANDIDENTIFY AND SUPPORT SOCIAL FUNCTIONING AND SKILL DEVELOPMENT GOALS OF INDIVIDUALS/FAMILIES.FROM 2017 THROUGH 2019, THE COMMUNITY-CLINIC CONNECTION PROGRAM HAS WORKED ON MORE THAN 425 CASES WITH INDIVIDUALS AND FAMILIES.ISBA HAS OUTREACH COLLABORATIONS WITH SPINA BIFIDA CLINICS AT:SHRINERS HOSPITALS FOR CHILDREN CHICAGOOSF HEALTHCARE IN PEORIAANN & ROBERT H. LURIE CHILDREN'S HOSPITAL OF CHICAGOSHIRLEY RYAN ABILITYLABLOYOLA MEDICINE
PROVIDE TARGETED FINANCIAL ASSISTANCE, INCLUDING SCHOLARSHIPS, EQUIPMENT FUNDS, AND EMERGENCY FINANCIAL ASSISTANCE TO ILLINOIS INDIVIDUALS AND FAMILIES LIVING WITH SPINA BIFIDA.WITH GENEROUS SUPPORT FROM "A HELPING HAND", ISBA'S EQUIPMENT FUND HELPS INDIVIDUALS AND FAMILIES WITH OUT OF POCKET COSTS FOR ORTHOTIC OR OTHER MOBILITY EQUIPMENT.FOR THE PAST EIGHT YEARS, ALL ELIGIBLE ADULTS APPLYING FOR AN ISBA SCHOLARSHIP HAVE RECEIVED ONE, THANKS IN PART TO DONORS TO THE PATRICK JURIS SCHOLARSHIP FUND AND "A HELPING HAND".THE ISBA PROFESSIONAL ADVISORY COUNCIL PROMOTES EXCELLENCE IN PUBLISHED SPINA BIFIDA CLINICAL RESEARCH WITH ITS ANNUAL $1,000 RESEARCH AWARDS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Matt Larsen | EXECUTIVE DIRECTOR | 40 | $78,726 |
| Paul Gerber | DIRECTOR-NEW | 2 | $0 |
| Robert Weidenaar | DIRECTOR | 2 | $0 |
| Churphena Reid Md | DIRECTOR | 2 | $0 |
| Michael O'Keefe | DIRECTOR | 2 | $0 |
| Julian Lin Md | DIRECTOR | 2 | $0 |
| Craig Donnelly | DIRECTOR | 2 | $0 |
| Blanca Jara | DIRECTOR/SECRETARY-PAST | 2 | $0 |
| Becky Rupnick | DIRECTOR/SECRETARY-NEW | 2 | $0 |
| James Marks | DIRECTOR/TREASURER | 2 | $0 |
| Elliott Quigley | DIRECTOR/VICE CHAIRMAN | 2 | $0 |
| Jeremy Meinhardt | DIRECTOR/CHAIRMAN-NEW | 2 | $0 |
| Adam Zellner | DIRECTOR/CHAIRMAN-PAST | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202031749349300133_public.xml