Organizations Filed Purposes:
TO MOBILIZE PEOPLE AND RESOURCES TO PROVIDE ACCESS TO HIGH-QUALITY CARE AND LEAD RESEARCH FOR A CURE SO THAT PEOPLE WITH PULMONARY FIBROSIS WILL LIVE LONGER, HEALTHIER LIVES.
To mobilize people and resources to provide access to high-quality care and lead research for a cure so that people with pulmonary fibrosis will live longer, healthier lives.
Outreach and Awareness: Total revenue recognized for the program was $2,423,701, which included contributions and sponsorships of $2,251,000 in addition to the program service revenue of $172,700. The PFF Ambassador Program empowers patients, caregivers, and health care professionals as spokespersons for the PF community on behalf of the PFF. PFF Ambassadors promote disease awareness, provide up-to-date information, and offer hope and inspiration to those affected by pulmonary fibrosis. PFF Ambassadors are available to speak at PFF Care Center Network events, support group meetings, fundraising events, (Continued on Schedule O)
PFF Patient Registry: Total revenue recognized for the program was $2,098,260, which included contributions and sponsorships of $153,863 in addition to the program service revenue of $1,944,397. The PFF Registry (Registry) is a research effort that brings together multiple stakeholders including patients, health care providers, and researchers to advance research and improve the quality of life of patients with pulmonary fibrosis (PF). The crux of the Registry is comprised of an electronic database of patient information on diagnosis, treatment, and quality of life that is deidentified (made anonymous) and (Continued on Schedule O)
PFF Summit: Total revenue recognized for the PFF Summit was $1,230,929, which included $636,508 in contributions and sponsorships received during the year or released from prior year receipts. PFF Summit 2019 is the PFF's biennial international health care conference on Pulmonary Fibrosis (PF). The goal of the PFF Summit is to foster a collaborative environment to improve education and awareness of PF and to identify new approaches to treat, and ultimately cure, this devastating disease. (Continued on Schedule O)
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| William T Schmidt | Director/President and CEO | 40 | $365,209 |
| Scott Staszak | Chief Operating Officer | 40 | $260,064 |
| Pauline Bianchi | Senior VP, Research & Programs | 40 | $210,160 |
| Laura Sadler | Chief Marketing Officer | 40 | $172,997 |
| Seth Klein | Sr Director, Development Ops | 40 | $145,227 |
| Rex Edwards | VP, CCN & PFF Patient Registry | 40 | $144,586 |
| Kerrie Trebonsky | VP, Finance | 40 | $131,368 |
| Zoe Bubany | VP, Board & External Relations | 40 | $120,096 |
| Dana A Ball | Director | 1 | $0 |
| Barbara Murphy | Director | 1 | $0 |
| Andy Limper | Director | 1 | $0 |
| Wendi Mason | Direcor | 1 | $0 |
| Jeff Harris | Director | 1 | $0 |
| Mike Henderson | Director | 1 | $0 |
| Terence Hales | Secretary | 1 | $0 |
| Laurie Chandler Cfp | Treasurer | 1 | $0 |
| David Mcninch | Vice-Chair | 1 | $0 |
| Colleen Attwell | Vice-Chair | 1 | $0 |
| George Eliades | Chairman | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202121059349301127_public.xml