Organizations Filed Purposes:
3 FOLD MISSION OF SUPPORT, EDUCATION, AND RESEARCH. SUPPORT: TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS, AND EDUCATIONAL INFORMATION. EDUCATION: TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH PATIENT AND HEALTH PROFESSIONAL SEMINARS, LITERATURE, AND PUBLICITY CAMPAIGNS. RESEARCH: TO STIMULATE AND SUPPORT RESEARCH TO IMPROVE TREATMENT AND ULTIMATELY FIND THE CAUSE OF AND CURE FOR SCLERODERMA AND RELATED DISEASES.
3 FOLD MISSION OF SUPPORT, EDUCATION, AND RESEARCH. SUPPORT: TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS, AND EDUCATIONAL INFORMATION.
PATIENT SUPPORT ACTIVITIES AND EDUCATION DAYS, MAINTAINING HELPLINE, ANSWERING TELEPHONE AND WRITTEN INQUIRIES, DISTRIBUTE LITERATURE AND OTHER EDUCATIONAL MATERIALS, MAILING REFERRALS TO HEALTH PROFESSIONAL, PUBLISHING NEWSLETTER.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Stephanie Gresh | EXECUTIVE DIRECTOR | 40 | $88,616 |
| Jennifer Bryson | VICE PRESIDENT | 1 | $0 |
| Eliisa Capstick | SECRETARY | 1 | $0 |
| Julie L Drewniak | DIRECTOR | 1 | $0 |
| John Varga Md | DIRECTOR | 1 | $0 |
| Peter Goldman | DIRECTOR | 1 | $0 |
| Mary Carns | DIRECTOR | 1 | $0 |
| Carol Goldman | DIRECTOR | 1 | $0 |
| Tony Cogan | PRESIDENT | 1 | $0 |
| Cleetus Friedman | DIRECTOR | 1 | $0 |
| David Helfand | DIRECTOR | 1 | $0 |
| Jules Cogan | DIRECTOR | 1 | $0 |
| Dan Clarin | TREASURER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202041959349302379_public.xml