Organizations Filed Purposes:
The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.
The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.
The United Leukodystrophy Foundation ULF is a 38-year-old international research and advocacy non-profit organization, serving both patient families and medical professionals in all fifty states and in 32 countries. The ULFs primary efforts include 1 fundraising for leukodystrophy research to discover improved therapies and ultimately a cure, 2 hosting an annual scientific symposium and family conference, and 3 providing education and medical referrals to families affected by the disease.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Donna Skwirut | Director | 2 | $0 |
| Yolanda Chacon-Serna | Director | 2 | $0 |
| Sa Von Rudenick | Director | 2 | $0 |
| Dr Stephanie Keller | Director | 2 | $0 |
| Colleen Kintner | Director | 2 | $0 |
| Dr Joseph Hacia | Director | 2 | $0 |
| Kristie Demarco | Director | 2 | $0 |
| Claudette Collier | Director | 2 | $0 |
| Joyce Changle | Director | 2 | $0 |
| Robert Rauner | President | 15 | $0 |
| John Wolf | Director | 2 | $0 |
| Ron Chapleau | Vice President | 2 | $0 |
| Margaret Halter | Secretary | 2 | $0 |
| Alan Fingeroot | Treasurer | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202121349349302007_public.xml