Organizations Filed Purposes:
TO PROVIDE THE MOST COMPREHENSIVE CARE AND SUPPORT TO PEOPLE LIVING WITH ALS AND THEIR FAMILIES IN CHICAGOLAND, SO THEY CAN CONFIDENTLY NAVIGATE THE DISEASE, AND ADVANCE SCIENTIFIC RESEARCH FOR THE PREVENTION, TREATMENT AND CURE OF ALS.
TO FIND A CURE FOR ALS, PROVIDE PATIENT AND FAMILY SUPPORT AND INCREASE PUBLIC AWARENESS.
THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH DONE AT FOUR LES TURNER ALS RESEARCH LABORATORIES, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES. IN ADDITION, THE FOUNDATION SPONSORS SUPPORT GROUPS, PROVIDES EQUIPMENT AND OTHER PROGRAM SERVICES TO PEOPLE WITH ALS AND THEIR FAMILIES. THE FOUNDATION ALSO INCREASES PUBLIC AWARENESS OF THE DISEASE THROUGH EDUCATIONAL PROGRAMS AND INITIATIVES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Andrea Pauls Backman | CHIEF EXECUTIVE OFFICER | 40 | $190,000 |
| Diana Pisone | DIRECTOR | 2 | $0 |
| Melissa Wilder | DIRECTOR | 2 | $0 |
| Philip Schwarz | DIRECTOR | 2 | $0 |
| Meg Rooney | DIRECTOR | 2 | $0 |
| Sarvesh Soi | DIRECTOR | 2 | $0 |
| Deborah Crockett | DIRECTOR | 2 | $0 |
| Joel A Schechter | VICE CHAIR | 2 | $0 |
| Erin Reardon Cohn | DIRECTOR | 2 | $0 |
| Mary Lou Pisone | DIRECTOR | 2 | $0 |
| Janene Jonas | SECRETARY | 2 | $0 |
| Joshua Newsome | DIRECTOR | 2 | $0 |
| David T Hoppe | DIRECTOR | 2 | $0 |
| Daniel Libit | DIRECTOR | 2 | $0 |
| Bonny Gaffen | DIRECTOR | 2 | $0 |
| Jodi M Harris | DIRECTOR | 2 | $0 |
| Robin Fern | VICE CHAIR | 2 | $0 |
| John Coleman Iii Md | DIRECTOR | 2 | $0 |
| Matthew Brown | DIRECTOR | 2 | $0 |
| Thomas F Boleky | VICE CHAIR | 2 | $0 |
| Harvey Gaffen | TREASURER | 2 | $0 |
| Ken Hoffman | BOARD CHAIR | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202031749349301418_public.xml