Organizations Filed Purposes:
TRISOMY 18 FOUNDATION IS DEDICATED TO ACCELERATING RESEARCH INTO THE CAUSES AND TREATMENTS OF TRISOMY 18, AND SUPPORTING ALL FAMILIES IMPACTED BY A TRISOMY 18 DIAGNOSIS.
EDUCATION AND SUPPORT PROGRAMS: TRISOMY 18'S NATIONALLY-RECOGNIZED PROGRAM SUPPORTS AND EDUCATES BOTH PATIENT FAMILIES AND MEDICAL PROVIDERS WHO TREAT FAMILIES AND CHILDREN WITH TRISOMY 18 THOUGH DIRECT SERVICE CALLS TO SUPPORT PROGRAM STAFF, WORKSHOPS, PUBLIC PRESENTATIONS, EDUCATIONAL MATERIALS AND TECHNOLOGY ENABLED PEER SUPPORT PROGRAMS.THE RESEARCH ADVOCACY AND PUBLIC ENGAGEMENT PROGRAM: THIS PROGRAM SUPPORTS CONSTITUENT ENGAGEMENT IN THE RESEARCH AND HEALTH POLICY-MAKING PROCESS AT FEDERAL AND STATE LEVEL ON LEGISLATIVE AND REGULATORY INITIATIVES THAT IMPACT THE LIVES OF FAMILIES AND THEIR CHILDREN WITH TRISOMY 18.THIS PROGRAM INVOLVES AND ENGAGES THE PUBLIC IN NATIONAL AWARENESS CAMPAIGNS TO SUPPORT OUR CAUSE TO MAKE TRISOMY 18 A PREVENTABLE AND TREATABLE CONDITION SO THAT LESS FAMILIES LOSE THEIR PRECIOUS NEWBORNS AND INFANTS TO THIS CONDITION. VOLUNTEERS ARE SUPPORTED IN HOSTING SPECIAL AWARENESS AND FUNDRAISING EVENTS BENEFITTING THE FOUNDATION IN LOCATIONS ACROSS THE UNITED STATES. THESE EVENTS HELP DEVELOP AND EXPAND PHILANTHROPIC PARTNERSHIPS TO ACCELERATE PROGRESS TOWARD TREATMENTS AND IMPROVED HEALTH OUTCOMES FOR CHILDREN IMPACTED BY TRISOMY 18 DIAGNOSIS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Victoria Miller | PRESIDENT | 40 | $16,615 |
| Kristine Shaughnessy | EXECUTIVE DIRECTOR | 40 | $0 |
| Donald Miller | BOARD MEMBER | 1 | $0 |
| Christena Pazos | BOARD MEMBER | 1 | $0 |
| Stephan Smolka | BOARD MEMBER | 1 | $0 |
| Jeanne Clark | BOARD MEMBER | 1 | $0 |
| Laura Giangiuli | BOARD MEMBER | 1 | $0 |
| Susan Donohoe | BOARD MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202043469349301109_public.xml