Organizations Filed Purposes:
TO ENCOURAGE AND FOSTER RESEARCH ON USHER SYNDROME
TO ENCOURAGE AND FOSTER RESEARCH ON USHER SYNDROME AND TO MAKE AVAILABLE AND DISSEMINATE INFORMATION ABOUT USHER SYNDROME TO PATIENTS, THEIR FAMILIES, AND THE GENERAL PUBLIC.
TO MAKE AVAILABLE AND DISSEMINATE TIMELY AND ACCURATE INFORMATION ABOUT USHER SYNDROME OR SIMILAR RARE DISEASES TO PATIENTS, FAMILY MEMBERS, PHYSICIANS AND OTHER INTERESTED PARTIES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Marilyn Beck | SECRETARY | 1 | $0 |
Megan O'Neill | VICE-PRESIDENT | 1 | $0 |
Nicole Schmitt | TREASURER | 1 | $0 |
Theresa Cacciatore | PRESIDENT | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201512889349300906_public.xml