Organizations Filed Purposes:
TO LEAD THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
THE ALS ASSOCIATION NORTH CAROLINA CHAPTER SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. THE CHAPTER SUPPORTS FIVE ALS CLINICS, MAINTAINS A MEDICAL EQUIPMENT LOAN PROGRAM WITH THREE LOCATIONS, HOSTS 15 MONTHLY SUPPORT GROUPS AND PROVIDES FINANCIAL SUPPORT TO FAMILIES FOR NEEDS NOT COVERED BY INSURANCE SUCH AS RESPITE CARE, HOME MODIFICATIONS, DURABLE MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY DEVICES.
THE ALS ASSOCIATION'S EDUCATION AND PUBLIC POLICY PROGRAM INCREASES UNDERSTANDING, EDUCATION AND AWARENESS OF THE DEVASTATING IMPACT OF LOU GEHRIGS DISEASE. KEY COMPONENTS OF THE PROGRAM INCLUDE A QUARTERLY NEWSLETTER, A SERIES OF WRITTEN EDUCATIONAL MATERIALS, UP-TO-DATE INFORMATION ON RESEARCH, IN-SERVICE TRAININGS PROVIDED TO PROFESSIONALS IN A VARIETY OF SETTINGS, AND AN ANNUAL CONFERENCE OFFERING TWO TRACKS - ONE FOR PROFESSIONALS AND ONE FOR PEOPLE WITH ALS AND THEIR CAREGIVERS.
FUNDING PROVIDED TO THE NATIONAL ALS OFFICE FOR ALS RESEARCH.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jerry Dawson | PRESIDENT | 40 | $144,200 |
| Kathleen Boyce | DIRECTOR | 4 | $0 |
| Bob Senn | DIRECTOR | 4 | $0 |
| Leslie Mastranunzio | DIRECTOR | 4 | $0 |
| Ed Ketchie | TREASURER | 4 | $0 |
| Helen Hunter | DIRECTOR | 4 | $0 |
| Tommy Harrell | DIRECTOR | 4 | $0 |
| Kathryn Foster | DIRECTOR | 4 | $0 |
| Jana Antos | DIRECTOR | 4 | $0 |
| Gray Angell | DIRECTOR | 4 | $0 |
| Sue Gorman | VICE CHAIR | 4 | $0 |
| Mark Anthony | CHAIR | 4 | $0 |
| Denise Kirkland | SECRETARY | 4 | $0 |
| Edward Miles | DIRECTOR | 4 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201643069349301564_public.xml