Organizations Filed Purposes:
The Champ Foundation supports research toward better treatments and a cure for diseases casued by mitochondrial DNA deletions, such as Pearson syndrome. These diseases are rare. For example, there have only been around 100 reported cases of Pearson syndrome.
In 2020, The Champ Foundation continued to fund research projects at Boston Children's Hospital, University of Miami, and Children's Hospital of Philadelphia. The Champ Foundation received a grant to establish a SLSMDS Research Network. To establish the Research Network, we hosted a virtual international conference, established a biospecimen repository, began developing a multi-site Natural History Study, and launched the Champ Foundation Registry, a research study of individuals with single large-scale mitochondrial DNA deletions (SLSMDS).
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Tyler Albright | Treasurer | 1 | $0 |
| Elizabeth Malkin | Secretary | 1 | $0 |
| Elizabeth Reynolds | Vice President | 10 | $0 |
| Jeffrey Reynolds | President | 20 | $0 |
| Walker Cole Arledge | Director | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202111259349301716_public.xml