Organizations Filed Purposes:
THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDDOSIS (MPS) AND MUCOLIPIDOSIS (ML).
THE SOCIETY FUNDED APPROXIMATELY 11 RESEARCH GRANTS DURING 2019 FOR THE PURPOSE OF FINDING TREATMENTS AND CURES FOR MPS AND RELATED DISEASES.
THE SOCIETY PROVIDED MEDICAL EQUIPMENT SCHOLARSHIPS, FUNERAL EXPENSE GRANTS, EDUCATION SCHOLARSHIPS, MEDICAL TRAVEL ASSISTANCE, AND TRAVEL TO CONFERENCES SCHOLARSHIPS FOR THE PURPOSE OF PROVIDING FAMILY SUPPORT FOR PEOPLE AND THEIR FAMILIES WHO ARE IN SOME WAY AFFECTED BY MPS.
THE SOCIETY PROVIDED INFORMATION SERVICES AND EDUCATIONAL SUPPORT FOR AFFECTED FAMILIES (NEWSLETTERS, SYNDROME BOOKLETS, FACT SHEETS, WEBSITE, DIRECTORY) AND INCREASED PUBLIC AWARENESS OF THESE RARE GENETIC DISEASES (CONFERENCES & ADVOCACY).
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Terri Klein | PRESIDENT & | 55 | $110,583 |
| Cristol Barrett O'Loughlin | DIRECTOR - P | 0.5 | $0 |
| Caroline Dabney | DIRECTOR - P | 0.5 | $0 |
| Sheri Wise | DIRECTOR | 1 | $0 |
| Austin Noll | DIRECTOR | 1 | $0 |
| Amber Mongan | DIRECTOR | 1 | $0 |
| Jason Madison | DIRECTOR | 1 | $0 |
| Shelby Lyon | DIRECTOR | 1 | $0 |
| Kristine Klenke | DIRECTOR | 1 | $0 |
| Larry Kirch | DIRECTOR | 1 | $0 |
| Stephanie Austin Bozarth | DIRECTOR | 1 | $0 |
| Christine Tippett | SECRETARY | 1 | $0 |
| Lynn Scott Hopkins | TREASURER | 1 | $0 |
| Steve Amy Holland | VICE CHAIRMA | 1 | $0 |
| Lisa Todd | BOARD CHAIRM | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202042199349301504_public.xml