Organizations Filed Purposes:
DEDICATED TO IMPROVING THE QUALITY OF LIFE OF PERSONS AFFECTED BY BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, PROMOTION OF RESEARCH AND DELIVERY OF SUPPORTIVE PROGRAMS AND SERVICES.
HEMOPHILIA OF NORTH CAROLINA PROVIDES EDUCATION TO HELP PEOPLE WITH BLEEDING DISORDERS AVOID DEBILITATING COMPLICATIONS AND LIVE LONGER, MORE ACTIVE AND HEALTHIER LIVES; CONDUCTS ADVOCACY INITIATIVES AT LOCAL AND NATIONAL LEVELS TO HELP ENSURE ACCESS TO MEDICAL CARE AND EQUITABLE INSURANCE REIMBURSEMENT FOR ALL; BUILDS AWARENESS OF BLEEDNG DISORDERS AND PROMOTES EARLY DIAGNOSIS; ADVOCATES AND CREATES AWARENESS FOR BLOOD SAFETY AND HELPS TO FUND AND PROMOTE RESEARCH TOWARD BETTER TREATMENTS AND CURES.
HEMOPHILIA OF NORTH CAROLINA PUBLISHES A QUARTERLY NEWSLETTER, THE CONCENTRATE, THAT IS DISTRIBUTED TO MEMBERS, THE MEDICAL COMMUNITY AND OTHER INTERESTED PARTIES. INFORMATION IN THE NEWSLETTER CONTAINS ARTICLES ON RELEVANT TOPICS TO THE BLEEDING DISORDERS COMMUNITY, UPDATES ON PROGRAMS AND SERVICES AND HIGHLIGHTS OF COMMUNITY MEMBERS. BASED ON INFORMATION RECEIVED FROM THE MEMBERSHIP, THE NEWSLETTER IS THEIR PRIMARY SOURCE OF INFORMATION. IN ADDITION TO THE NEWSLETTER, HEMOPHILIA OF NORTH CAROLINA PUBLISHES FLYERS WITH INFORMATION ABOUT UPCOMING PROGRAMS AND SERVICES.
THE HEMOPHILIA OF NORTH CAROLINA FINANCIAL ASSISTANCE PROGRAM IS PART OF THE ORGANIZATION'S CONTINUING EFFORT TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS AND FAMILIES AFFECTED BY BLEEDING DISORDERS. THIS PROGRAM PROVIDES FUNDS TO ELIGIBLE INDIVIDUALS AND FAMILIES WHO NEED ASSISTANCE WITH EXPENSES INCURRED IN THE CARE, TREATMENT OR PREVENTION OF A BLEEDING DISORDER, AND/OR BASIC LIVING EXPENSES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Charlene Cowell | EXECUTIVE DIRECTOR | 40 | $73,099 |
| Gillian Schultz | PROGRAM MANAGER | 40 | $53,045 |
| Bryant Windham | BOARD MEMBER | 2 | $0 |
| Ellen Kearney | BOARD MEMBER | 2 | $0 |
| Amy Hadley | BOARD MEMBER | 2 | $0 |
| Garima Gupta | BOARD MEMBER | 2 | $0 |
| Lucy Kucmierz | SECRETARY | 2 | $0 |
| Kathy Register | TREASURER | 2 | $0 |
| Phillip Poovey | VICE PRESIDENT | 2 | $0 |
| Steven Humes | PRESIDENT | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033179349301908_public.xml