Organizations Filed Purposes:
THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.
The mission of the KdVS Foundation is to educate, increase awareness, and promote research for the support and enrichment of individuals living with KdVS and their families.
Promoting research of KdVS in fields including clinical, drug therapy, speech therapy, and epilepsy.
Providing patient advocacy summits and social gathering events for the KdVS community and interested medical professionals.
Increasing awareness of KdVS in both the general population and medical profession.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Alicia Holcombe | Board Member | 2 | $0 |
| Steven A Speirs | Treasurer | 3 | $0 |
| Neal Dermerer | Board Member | 1 | $0 |
| Mandy Bylund | Board Member | 5 | $0 |
| Steven Tiberg | Board Member | 2 | $0 |
| Alayna Haynam | Vice-President | 5 | $0 |
| Angela Dejong | Board Member | 2 | $0 |
| Patty Tiberg | President | 4 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023099349301662_public.xml