CHILDRENS CANCER ASSOCIATION
1200 NW Naito Parkway No 140, Portland, OR 97209 www.joyrx.org

Total Revenue
$5,631,787
Total Expenses
$5,467,135
Net Assets
$3,445,935

Organizations Filed Purposes: Children's Cancer Association (CCA) is an Oregon nonprofit corporation established in 1995. CCA delivers innovative, award winning programs that provide joy to seriously ill children with life threatening illnesses and their families at no cost, offering them unique in-hospital programs, family and emotional support, access to information, use of a family retreat home, and education and resources to improve their care and quality of life.

The Children's Cancer Association ("CCA")is an Oregon nonprofit corporation established in 1995. The Association provides multi-tiered services to children and families at no cost, offering them unique in-hospital programs, family and emotional support, access to information, use of a family retreat home, and opportunities for children/teens and family members to experience joy, comfort and respite while battling life-threatening illnesses.

MyMusicRx - The flagship program of Children's Cancer Association (CCA), delivers the healing power of music to kids and teens facing cancer and other serious illnesses. CCA's MyMusicRx program engages hospitalized kids and teens bedside and online with tailored, one-on-one music experiences, designed to relieve their stress, anxiety, and perception of pain. MyMusicRx's trained music specialists engage hospitalized kids of all ages and diagnoses, playing music for and with them and their families. State-of-the-art music carts are stocked with high-quality instruments for kids to explore and tablets loaded with musical games and apps.Continued on Schedule OThe program extends online at MyMusicRx.org with exclusive artist performances and music lessons. MyMusicRx.org is available to kids and teens free-of-charge 24/7. Live, in-hospital concerts complete the MyMusicRx experience, and it's CCA's goal to place MyMusicRx in 250 children's hospitals and medical centers by the year 2025.Since 1995, MyMusicRx has served over 275,000 children along with their families, caregivers, and medical professionals. Our digital programs are available daily to the kids and teens in pediatric hospitals across the country, providing nearly 30,000 service interactions to over 2,500 pediatric patients last year.This year, over 6,000 children and teens in Oregon, Texas, and Massachusetts received bedside visits from MyMusicRx specialists and volunteers.

Community Outreach and Education - In addition to our core program offerings, CCA is proud to provide comprehensive resources and information to families facing the profound trauma of a pediatric cancer diagnosis. CCA's Kids' Cancer Pages, currently in its fifth edition, is the first-ever national resource directory on childhood cancer and was recognized by the National Cancer Institute as "the most comprehensive guide for families currently available." It is sent free-of-charge to every pediatric hospital in the country, and we provide a searchable PDF online on our website at JoyRx.org. Continued on Schedule OFor families battling cancer and the medical professionals who care for them, this one-stop directory is a vital support tool. A special local edition, Family Support Pages, is a comprehensive community resource connecting families in Oregon and Southwest Washington to essential items and services. An updated version was released in 2019, along with one-page handouts on particular topics.At CCA, we know that it can be a challenge to balance hospital stays, doctor visits, and caring for your child while accomplishing everyday tasks. As part of our community outreach efforts, CCA staff and volunteers relieved stress and brought peace of mind by providing a clean house and tidy yard to six families and dinner boxes to 328 families. To ease the burden of buying back-to-school supplies, CCA provided 207 fully packed bags of age-specific school necessities for seriously ill children and their siblings.The impact of our talented staff was multiplied by nearly 3,500 generous volunteers who invested 14,061 hours into our local community. The monetary value of this volunteer time is over $350,000.This year, CCA's education and resources were accessed over 3,500 times by families, caregivers, and volunteers.

Chemo Pal Mentor Program - In 1999, Children's Cancer Association (CCA) introduced the Chemo Pal Mentor Program, the only program of its kind in the nation, which pairs seriously ill kids and teens in treatment with trained, volunteer adult mentors-creating long-term, trusted friendships.CCA's Chemo Pal mentors play games, listen to music, share hobbies, and simply offer the comfort of companionship, relieving the anxiety, loneliness, and isolation experienced by kids in treatment. A Chemo Pal mentor can also give parents a much-needed break to grab a cup of coffee, talk with doctors, or spend time with their other children. Continued on Schedule OTo-date, the program has now matched more than 1,500 kids undergoing lengthy treatment regimens with a trained and trusted adult mentor volunteer.CCA Chemo Pal mentors are carefully screened, trained, and thoughtfully matched with families, including those with bilingual needs. Chemo Pal mentors and kids spend about four hours per month together, both in hospital and out in the community, enjoying activities like sporting events, concerts, and craft and gaming nights. The average match lasts 12 months, and many last for the duration of a child's treatment. CCA provides ongoing support and education for our front-line volunteers.This year, CCA delivered the joy of friendship to 175 Pacific Northwest children and teens. In addition, we provided 2,431 events, activities, and tickets to kids, family members, and their Chemo Pal mentors outside of the hospital environment.

Executives Listed on Filing

Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing

NameTitleHours Per WeekTotal Salary
Regina EllisChief Joy Officer/Founder40$250,461
Danielle YorkPresident and GM40$219,861
Jennifer O'BryanVP of Development40$150,354
Jack PipkinVP of New Business Development40$123,836
Scott BurtonBoard Chair4$0
Clare HamillFounding Board Chair2$0
Rosemary ColliverBoard Chair Emeritus2$0
Paul GulickBoard Chair Emeritus2$0
Andy LytleBoard Chair Emeritus2$0
Tom SandBoard of Director-Former2$0
Bob ProffittBoard of Director-Former2$0
Albert MenasheBoard of Director-Former2$0
Tara KinatederBoard of Director-Former2$0
Mike GolubBoard of Director-Former2$0
Tricia Hecht-GladBoard of Director-Former2$0
Steve BlakeBoard of Director-Former2$0
Jason WertsBoard of Director2$0
Robett TrumanBoard of Director2$0
Mike TarbellBoard of Director2$0
Sonja StevesBoard of Director2$0
John SimpsonBoard of Director2$0
Ron Penner-AshBoard of Director2$0
Lesley Otto MdBoard of Director2$0
Matt LounsburyBoard of Director2$0
Scott LawrenceBoard of Director2$0
Peter KwongBoard of Director2$0
Paul HoganBoard of Director2$0
Sharon GueckBoard of Director2$0
Rob GoodmanBoard of Director2$0
Lori GaffneyBoard of Director2$0
Chris FunkBoard of Director2$0
Bill FoudyBoard of Director2$0
Analia EarhartBoard of Director2$0
Jessi DuleyBoard of Director2$0
Andrea CorradiniBoard of Director2$0
Tim CooperBoard of Director2$0
Aaron CooperBoard of Director2$0
Mark ByrumBoard of Director2$0
Ryan BeckleyBoard of Director2$0
Paula BarranBoard of Director2$0
Suzann Baricevic MurphyBoard of Director2$0

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