Organizations Filed Purposes:
SSADH IS AN ORGANIZATION REPRESENTING CHILDREN AND FAMILIES AFFECTED BY A DISEASE OF GABA RELATED NEUROTRANSMITTER METABOLISM. OUR MISSION IS TO FURTHER AN UNDERSTANDING AND FUND SCIENTIFIC RESEARCH REGARDING SUCCINIC SEMIALDEHYDE DEHYDROGENASE DEFICIENCY ("SSADH") WITH THE ULTIMATE GOAL OF DEVELOPING TREATMENTS AND A CURE FOR SSADH, AND TO ASSIST THOSE WE REPRESENT THOUGH EDUCATION, ADVOCACY AND RESEARCH.
METABOLIC AND MOLECULAR STUDIES IN AUTOPSIED SSADH-DEFICIENT TISSUES.
DEVELOPMENT OF AN SSADH BIOREPOSITORY CREATING A BIOBANK WHERE BIO SPECIMENS AND MATCHING CLINICAL DATA ARE COLLECTED LONGITUDINALLY FROM ALL INTERESTED PARTIES - PATIENTS, SIBLINGS AND FAMILY MEMBERS.
DEVELOP MOLECULAR CONSEQUENCES OF SSADH MUTATIONS AND NIH INTERNATIONAL TRAVEL FUNDING.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| F Marie Coakley | DIRECTOR | 0.5 | $0 |
| Thomas D Spanel | DIRECTOR | 0.5 | $0 |
| James N Keck Jr | TREASURER AND DIRECTOR | 0.5 | $0 |
| Carolyn A Hoffman | VP, SECRETARY & DIRECTOR | 5 | $0 |
| Bradley J Hoffman | PRESIDENT AND DIRECTOR | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202043019349301339_public.xml