Organizations Filed Purposes:
THE NATIONAL PKU ALLIANCE (NPKUA) WORKS TOWARD EXPANDING PKU RESEARCH AND ACCELERATING THE TIMELINE FOR A CURE BY INVESTING IN PEER-REVIEWED AND TARGET RESEARCH. NPKUA PROVIDES EDUCATION AND SUPPORT TO PEOPLE LIVING WITH PKU. NPKUA IS THE NATIONAL VOICE FOR ADVOCACY AT THE FEDERAL LEVEL. THE BOARD OF DIRECTORS INCLUDES LEADERS OF LOCAL ORGANIZATIONS THROUGHOUT THE NATION, AS WELL AS REPRESENTATIVES OF THE ACADEMIC MEDICAL COMMUNITY AND INDUSTRY.
TO IMPROVE THE LIVES OF INDIVIDUALS WITH PKU AND PURSUE A CURE.
AWARDED $520,910 IN OUR RESEARCH PROGRAM TO RESEARCH PROJECTS AIMED AT IMPROVING PKU TREATMENT AND FINDING A CURE.
EDUCATION AND ADVOCACY - CREATED AND RELEASED EDUCATIONAL VIDEOS WITH PATIENTS AND MEDICAL PROFESSIONALS ON PKU TREATMENT OPTIONS, TRANSITIONING TO ADULT CARE AND MATERNAL PKU. DEVELOPED TWO NEW MENTORING PROGRAMS TO PROVIDE SUPPORT TO ADULTS STRUGGLING TO MANAGE THEIR PKU.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Christine Brown | EXECUTIVE DIRECTOR | 40 | $88,260 |
| Anne Pariser | DIRECTOR | 1 | $0 |
| Susan Berry | DIRECTOR | 1 | $0 |
| Lillian Isabella | DIRECTOR | 1 | $0 |
| Brittany Holmes | DIRECTOR | 1 | $0 |
| J Glenn Haber | DIRECTOR | 1 | $0 |
| Sharon Ernst | DIRECTOR | 1 | $0 |
| Stephen Aselage | DIRECTOR | 1 | $0 |
| Heather Bomar | DIRECTOR | 1 | $0 |
| Les Clark | MEMBER AT LARGE | 1 | $0 |
| Rhonda Connolly | SECRETARY | 1 | $0 |
| Jerry Elkins | TREASURER/MEMBER AT LARGE | 2 | $0 |
| Dick Michaux | VICE PRESIDENT | 2 | $0 |
| Amy Oliver | PRESIDENT | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202100909349300220_public.xml