Organizations Filed Purposes:
TO EDUCATE, SUPPORT, SERVE AND ADVOCATE FOR CHILDREN WITH CANCER AND BLOOD DISORDERS, THEIR FAMILIES, SURVIVORS OF THESE DISEASES AND THE PROFESSIONALS WHO CARE FOR THEM.
DIRECT ASSISTANCE TO FAMILIES - PROVIDE EMERGENCY ASSISTANCE TO FAMILIES OF AREA CHILDREN ON TREATMENT FOR CANCER AND LIFE-THREATENING BLOOD DISORDERS WHO NEED HELP WITH BASIC LIVING EXPENSES (UTILITIES, RENT/MORTGAGE, PHONE, CAR REPAIRS, GROCERIES) AND TRANSPORTATION. PROVIDE PREPAID GAS CARDS TO FAMILIES WHO MUST TRAVEL LONG DISTANCES FOR A CHILD'S TESTS AND TREATMENT.
GENERAL PATIENT AND FAMILY SUPPORT - PROVIDE INFORMATION AND ASSISTANCE TO THE FAMILIES OF HOSPITALIZED CHILDREN, INCLUDING NEW DIAGNOSIS BAGS WITH A PARENT INFORMATIONAL FOLDER, BOOKS ON CHILDHOOD CANCER, TOYS, GAMES AND OTHER DISTRACTIONS AND COMFORT ITEMS DURING THAT FIRST FRIGHTENING HOSPITALIZATION. OFFER EDUCATIONAL MATERIALS ON CHILDHOOD CANCER, BACK-TO-SCHOOL ISSUES, COPING WITH HAIR LOSS, NUTRITION, PREPARING FOR A BONE MARROW OR STEM CELL TRANSPLANT, DEALING WITH GRIEF AND OTHER ESSENTIAL TOPICS OUR KIDS AND FAMILIES FACE, BOTH IN OUR HOSPITAL-BASED LIBRARY AT THE AMERICAN FAMILY CHILDREN'S HOSPITAL (AFCH) AND AT OUR OFFICE ON ATWOOD AVENUE. SUPPLY AND MAINTAIN THE POPULAR PEDIATRIC HERO BEAD PROGRAM AT AFCH. KIDS AND TEENS COLLECT BEADS THAT REPRESENT THE MANY PROCEDURES AND MILESTONES OF THEIR PERSONAL CANCER EXPERIENCE AND STRING THEM ONTO CORDS, CREATING A PERMANENT, TANGIBLE RECORD OF THEIR STRENGTH AND ENDURANCE. SPONSOR AN ANNUAL "ADOPT-A-FAMILY" PROGRAM DURING THE HOLIDAYS, OFFERING DONORS THE OPPORTUNITY TO PURCHASE GIFTS AND GROCERIES FOR FAMILIES IN NEED WHOSE CHILDREN ARE ON INTENSIVE TREATMENT. ALSO SUPPORT PARENT/STAFF INITIATIVES TO IMPROVE SERVICES FOR CHILDREN AND FAMILIES AT THE AFCH.
PEER SUPPORT AND SOCIAL EVENTS FOR FAMILIES - HOST A MONTHLY FAMILY SUPPORT GROUP TO PROVIDE FAMILIES OF CHILDREN WITH CANCER THE CHANCE TO DINE AND DO ACTIVITIES TOGETHER, SHARING SUPPORT AND INFORMATION IN A RELAXED, NON-MEDICAL ATMOSPHERE. HOLD PERIODIC PEER SUPPORT AND EDUCATIONAL ACTIVITIES FOR FAMILIES OF CHILDREN WITH SICKLE CELL DISEASE, TEEN PATIENTS AND SIBLINGS, AND PARENTS OF CHILDREN IN PARTICULAR DIAGNOSIS GROUPS. PROVIDE FAMILY-TO-FAMILY SUPPORT BY PHONE OR EMAIL. SPONSOR QUARTERLY PARTIES AND SOCIAL ACTIVITIES SO KIDS, THEIR PARENTS, AND SIBLINGS CAN ENJOY THEMSELVES AS A FAMILY AND SHARE INFORMAL SUPPORT WITH OTHERS WHO ARE ON THE SAME JOURNEY. HOST AN ANNUAL KIDS' FISHING DAY WITH AREA FISHING CLUBS AND PERIODIC ACTIVITIES AT WISCONSIN BADGER SPORTING EVENTS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Susannah Peterson | EXECUTIVE DIRECTOR | 40 | $55,415 |
| Michele Pawlowsky | TREASURER | 2 | $0 |
| John Stofflet | DIRECTOR | 1 | $0 |
| Kristina Hatch Thru Feb 2019 | DIRECTOR | 1 | $0 |
| Megan Weimer Gendel | DIRECTOR | 1 | $0 |
| Mike Herbert | VICE PRESIDENT | 1 | $0 |
| Dave Storey | DIRECTOR | 1 | $0 |
| Tammy Fitzpatrick Thru June 2019 | DIRECTOR | 1 | $0 |
| Cara Connelly | DIRECTOR | 1 | $0 |
| Kathryn Murphy | SECRETARY | 1 | $0 |
| Kimberly Link | PRESIDENT | 7 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013219349305666_public.xml