Organizations Filed Purposes:
THE NASPGHAN FOUNDATION FUNDS AND SUPPORTS THE RESEARCH AND EDUCATION MISSIONS OF NASPGHAN IN ORDER TO ENHANCE THE HEALTH AND WELL-BEING OF CHILDREN WITH GASTROINTESTINAL, LIVER, PANCREAS AND NUTRITIONAL DISORDERS.
FUNDS & SUPPORTS RESEARCH AND EDUCATION MISSIONS OF NASPGHAN.
EDUCATIONAL CAMPAIGNS:THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH A DIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES. TOPIC AREAS ARE REFLUX AND GERD, INFLAMMATORY BOWEL DISEASE, CELIAC DISEASE AND GLUTEN-RELATED DISORDERS, CONSTIPATION, EOSINOPHILIC ESOPHAGITIS, NUTRITION, ENDOSCOPY, AND NONALCOHOLIC FATTY LIVER DISEASE IN CHILDREN, ADOLESCENTS AND YOUNG ADULTS. THE FOUNDATION'S GOAL IS TO EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THE DEVELOPMENT OF NEW RESEARCH IN THESE AREAS. THE PRIMARY OBJECTIVES ARE TO IMPROVE THE QUALITY OF LIFE AND TO CHANGE PEDIATRIC AND ADULT HEALTH OUTCOMES BY EARLY DETECTION AND INTERVENTION.GIKIDS IS THE PATIENT OUTREACH AND EDUCATION EFFORT OF NASPGHAN. WITH GIKIDS, NASPGHAN AND THE FOUNDATION ARE WORKING TO REACH OUT DIRECTLY TO FAMILIES, KIDS AND TEENS WHO LIVE WITH DIGESTIVE CONDITIONS TO PROVIDE THEM WITH THE INFORMATION THEY NEED TO: -UNDERSTAND AND IMPROVE THEIR DIGESTIVE HEALTH -WORK WITH THEIR HEALTH CARE PROVIDERS -LIVE A MORE INDEPENDENT LIFE -UNDERSTAND WHAT WORKS IN PLAIN LANGUAGENEW EDUCATIONAL RESOURCES AVAILABLE IN 2018-2019 INCLUDE: "NEW FRONTIERS IN INTESTINAL FAILURE: THE LATEST AND GREATEST" THIS WEBINAR FULFILLS THE MEDICAL PROFESSIONAL NEEDS AND GAPS IN THE MANAGEMENT AND TREATMENT OF INTESTINAL FAILURE. TOPICS COVERED INCLUDE THE GROWING INNOVATIONS OF ALTERNATIVE LIPIDS, POTENTIAL USE OF TED IN CHILDREN, AND THE EFFECT THAT THESE INTERVENTIONS HAVE HAD ON THE FIELD OF INTESTINAL REHABILITATION AND TRANSPLANT.NAFLD GUIDELINES SUMMARYTHE NASPGHAN FOUNDATION DEVELOPED A NAFLD GUIDELINE SUMMARY FOR THE DIAGNOSIS AND TREATMENT OF NONALCOHOLIC FATTY LIVER DISEASE IN CHILDREN: RECOMMENDATIONS FROM THE EXPERT COMMITTEE ON NAFLD (ECON) AND THE NORTH AMERICAN SOCIETY OF PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION (NASPGHAN) WAS PUBLISHED IN THE JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION - VOLUME 64, NUMBER 2, FEBRUARY, 2017.THE INFORMATION IN THE GUIDELINE SUMMARY IS A "CONDENSED" VERSION HIGHLIGHTING KEY AREAS FOR THE PRACTITIONER AND IS DESIGNED, TO BE USEFUL IN A REAL TIME PRACTICE SETTING.NAFLD SLIDE SETTHIS SLIDE-SET PROVIDES AN UPDATE ON SCREENING, DIAGNOSIS,AND EFFECTIVE TREATMENT OPTIONS FOR PEDIATRIC NAFLD TO HELP LEARNERS IMPLEMENT OPTIMAL STRATEGIES INTO THEIR CLINICAL PRACTICE. THE SLIDE SET IS BASED ON THE NAFLD GUIDELINE.GERD GUIDELINE SUMMARYTHE NASPGHAN FOUNDATION HAS DEVELOPED A SUMMARY OF ALGORITHM 1, MANAGEMENT OF THE SYMPTOMATIC INFANT, PUBLISHED IN THE PEDIATRIC GASTROESOPHAGEAL REFLUX CLINICAL PRACTICE GUIDELINES: JOINT RECOMMENDATIONS OF THE NORTH AMERICAN SOCIETY FOR PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY, AND NUTRITION AND THE EUROPEAN SOCIETY FOR PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY, AND NUTRITION. JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION - VOLUME 66, ISSUE 3, MARCH 2018. TWO VERSIONS HAVE BEEN CREATED AND CAN BE ACCESSED ON THE NASPGHAN WEBSITE. ONE WAS DEVELOPED TO ASSIST PRIMARY CARE PROVIDERS, AND DIETITIANS; AND THE SECOND VERSION FOR PEDIATRIC GASTROENTEROLOGISTS AND GI DIETITIANS. BOTH SUMMARIZE THE GUIDELINE'S APPROACH TO INFANTS WITH FREQUENT REGURGITATION OR VOMITING SUSPECTED OF GERD.NASPGHAN NUTRITION UNIVERSITY (N2U)THIS COURSE IS DESIGNED TO PROVIDE SPECIALIZED NUTRITION EDUCATION IN AREAS ASSOCIATED WITH THE PRACTICE OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION TO 3RD YEAR FELLOWS, JUNIOR FACULTY AND DIETITIANS. IT TARGETS TWO GROUPS: CANDIDATES WHO RECEIVED MINIMAL NUTRITION EDUCATION DURING THEIR FELLOWSHIP OR WHOM PLAN TO PURSUE PEDIATRIC NUTRITION AS THEIR CAREER FOCUS. THE COURSE INCLUDES "HOT" TOPICS DISCUSSIONS AND A NUTRITION JEOPARDY COMPETITION ON FRIDAY. ON SATURDAY, A SERIES OF CHALLENGING CASES ARE PRESENTED IN A SMALL GROUP SETTING.TOPICS COVERED INCLUDE DIAGNOSIS OF PEDIATRIC MALNUTRITION FAILURE TO THRIVE AND FEEDING DISORDERS MICRONUTRIENT DEFICIENCIES CRITICAL CARE NUTRITION SHORT BOWEL SYNDROME/MALABSORPTION OBESITY NUTRITIONAL MANAGEMENT OF CYSTIC FIBROSIS FOOD ALLERGY AND EOSINOPHILIC ESOPHAGITIS. NUTRITIONAL THERAPY IN INFLAMMATORY BOWEL DISEASE NUTRITION SUPPORT IN CHRONIC LIVER DISEASECOMING IN 2020EOE ONLINE EDUCATION PROGRAMNASPGHAN AND CEGIR (CONSORTIUM OF EOSINOPHILIC GASTROINTESTINAL RESEARCHERS) ARE DEVELOPING A WEB BASED EDUCATION SERIES ON EOSINOPHILIC ESOPHAGITIS. THE PROGRAM CONSISTS OF 6 MODULES WITH 26 PRESENTATIONS. AFTER PARTICIPATING IN THE ON-LINE LECTURES THE ATTENDEES WILL BE ABLE TO:1. UNDERSTAND THE PATHOPHYSIOLOGY OF EOE2. KNOW THE CLINICAL PRESENTATIONS AND INITIAL EVALUATION OF A PATIENT WITH EOE INCLUDING THE DIFFERENTIAL DIAGNOSIS OF EOE3. UNDERSTAND THE THERAPEUTIC OPTIONS FOR TREATMENT OF EOE AND HOW TO MONITOR A PATIENT AFTER TREATMENTNASPGHAN FOUNDATION/NASPGHANCURRICULUM FOR PEDIATRIC GASTROENTEROLOGY FELLOWSTHIS DIDACTIC CURRICULA WITH SELF- LEARNING MODULES WILL COVERS TOPICS INCLUDING: NUTRITIONAL ASSESSMENT, BASIC NUTRITIONAL PHYSIOLOGY, MICRONUTRIENTS, FEEDING, MALNUTRITION, NUTRITIONAL SUPPORT FOR GI AND NON-GI CONDITIONS, OBESITY, AND MACRONUTRIENTS/FORMULA COMPOSITION. THE COURSE IS DESIGNED FOR USE IN PEDIATRIC GI FELLOWSHIP TRAINING PROGRAMS.UPDATED CONSTIPATION MATERIALS(AVAILABLE ON GIKIDS.ORG)NEW CONSTIPATION PATIENT MATERIALS, ARE NOW AVAILABLE ON THE GIKIDS.ORG WEBSITE. NEW PATIENT HANDOUTS COVER THE FOLLOWING TOPICS: TREATMENT AND MANAGEMENT, NUTRITION, FECAL SOILING, TOILET TRAINING TIPS, FLUID & FIBER. THESE MATERIALS WILL SOON BE MADE AVAILABLE IN FRENCH AND SPANISH.THE POO IN YOUSTILL A FAVORITE AMONG OUR MEMBERS, THIS INTERACTIVE ANIMATED VIDEO EXPLAINS WHAT CAUSES ACCIDENTS, WHY THEY HAPPEN SO OFTEN, AND HOW WE CAN TREAT THE PROBLEM. WATCH THE VIDEO, WITH OVER 3.8 MILLION VIEWS DEVELOPED BY APGNN MEMBER BECKY KENDALL, NP, CHILDREN'S HOSPITAL COLORADO.DOC4MEA SIGNIFICANT PROPORTION OF INFLAMMATORY BOWEL DISEASE (IBD) PATIENTS PRESENT IN CHILDHOOD WITH UP TO ONE THIRD OF PATIENTS PRESENTING BEFORE THE AGE OF 20 YEARS. AS A RESULT, MANY INFLAMMATORY BOWEL DISEASE PATIENTS MUST UNDERGO THE TRANSITION PROCESS, WHERE THEIR CARE IS TRANSFERRED FROM A PEDIATRIC-CENTERED SERVICE TO AN ADULT-CARE SERVICE. THE DOC4ME APP HELPS ADOLESCENTS AND YOUNG ADULTS WITH INFLAMMATORY BOWEL DISEASE FIND A DOCTOR WHO TREATS ADULTS WITH INFLAMMATORY BOWEL DISEASE IN A SPECIFIC AREA. DOC4ME ALSO HELPS YOUNG PEOPLE GET READY FOR THEIR MEDICAL VISIT WITH THEIR NEW DOCTOR BY KNOWING WHAT TO BRING AND HOW TO PREPARE.
OTHER PROGRAM SERVICES:[1] CONSTIPATION CARE PACKAGE - INFORMATION FOR DOCTORS, NURSES AND PATIENTS REGARDING THE TREATMENT AND MANAGEMENT OF CONSTIPATION.[2] PSC WEBINAR - TO EDUCATE PATIENTS, FAMILIES AND CAREGIVERS ABOUT THE DIAGNOSIS AND TREATMENT OF AUTOIMMUNE LIVER DISEASES IN PEDIATRIC PATIENTS.-TO REVIEW STRESS MANAGEMENT, COPING, NUTRITIONAL, LEGAL AND ADVOCACY ISSUES.[3] WEBINAR: EXOCRINE PANCREATIC INSUFFICIENCY (JUNE 16, 2016) - TO DEFINE EPI. -TO UNDERSTAND THE EPIDEMIOLOGY, PATHOPHYSIOLOGY AND GENETIC SYNDROMES LEADING TO EPI.-TO DESCRIBE CLINICAL SYMPTOMS OF EPI.-TO LIST AVAILABLE TESTING FOR EPI FROM SIMPLE SCREENING TESTS TO THE MORE SPECIALIZED THAT NEED AN ENDOSCOPY, INCLUDING ENDOSCOPIC PANCREATIC FUNCTION TESTING.-TO PROVIDE COMPARISONS OF AVAILABLE TESTING WITH PROS AND CONS OF CLINICAL UTILITY.-TO UNDERSTAND HOW TO MANAGE PATIENTS WITH EPI.-TO PROVIDE INFORMATION REGARDING ONGOING AND FUTURE RESEARCH ON EPI[4] GERD GUIDELINES ALGORITHM FOR ABBOT NUTRITION TN USE -
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Margaret Stallings | EXECUTIVE DIRECTOR | 6 | $50,000 |
| Amber Smith Mba Rd Cd Cpnp | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Miriam Vos Md Msph | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Allison Ta Md | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Maria Olivia-Hemker Md | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Marialena Mouzaki Md | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Sarah Kemme Md | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Benjamin Gold Md Faap Facg | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Glenn Furuta Md | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Alessio Fasano Md | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Robert Baldassano Md | ADVISORY BOARD MEMBER | 0.5 | $0 |
| Joel Rosh Md | DIRECTOR | 0.5 | $0 |
| Patricia Robuck Phd Mph | DIRECTOR | 0.5 | $0 |
| Vicky Ng Md | DIRECTOR | 0.5 | $0 |
| Karen Murray Md | DIRECTOR | 0.5 | $0 |
| Marjorie Merrick Vp Research | DIRECTOR | 0.5 | $0 |
| Jenifer Lightdale Md Mph | DIRECTOR | 0.5 | $0 |
| Praveen Goday Mbbs | DIRECTOR | 0.5 | $0 |
| James Heubi Md | DIRECTOR | 0.5 | $0 |
| Nicola Jones Md Phd | DIRECTOR | 0.5 | $0 |
| Jeannie Huang Md Mph | DIRECTOR | 0.5 | $0 |
| Ann Scheimann Md Mba | SECRETARY - TREASURER | 1 | $0 |
| Barry Wershil Md | PAST PRESIDENT | 1 | $0 |
| Menno Verhave Md | PRESIDENT | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202032169349300978_public.xml