NATIONAL FOUNDATION FOR CELIAC AWARENESS
200 W BUTLER AVE 544, AMBLER, PA 19002 www.beyondceliac.org

---

Organizations Filed Purposes: BEYOND CELIAC UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE.

THE NATIONAL FOUNDATION FOR CELIAC AWARENESS, DOING BUSINESS AS BEYOND CELIAC, UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE. BEYOND CELIAC ENVISIONS A WORLD WHERE THE 1 IN 5 PEOPLE WHO ARE UNDIAGNOSED CAN RESTORE THEIR LIVES THROUGH A TIMELY AND ACCURATE DIAGNOSIS. WE BELIEVE THAT PATIENTS DESERVE OPTIONS TO TREAT THIS CHRONIC AUTOIMMUNE DISEASE BEYOND THE GLUTEN-FREE DIET, WHICH HAS BEEN THE ONLY TREATMENT FOR CELIAC DISEASE SINCE THE 1800'S. FURTHER, CURRENT RESEARCH IS PROVING THAT THE GLUTEN-FREE DIET IS NOT FULLY EFFECTIVE FOR MOST PEOPLE. WE AIM TO POSITIVELY IMPACT ALMOST EVERY ASPECT OF CELIAC DISEASE RESEARCH BY ELIMINATING A MAJOR BARRIER TO PROGRESS: THE LACK OF RELIABLE, IN-DEPTH PATIENT INFORMATION. OUR AGGRESSIVE RESEARCH AGENDA ADVANCES PATHWAYS TO NEW TREATMENTS AND, ONE DAY, A CURE. WHAT WE DO BEYOND CELIAC SERVES THE 21 MILLION AMERICANS REQUIRING A GLUTEN-FREE DIET AS THE ONLY CURRENT

DIAGNOSIS, RESEARCH, AND DISEASE MANAGEMENT: USING A PATIENT-CENTERED APPROACH AND WORKING WITH THE BEYOND CELIAC PATIENT AND FAMILY ADVISORY COUNCIL AND THE BEYOND CELIAC SCIENTIFIC ADVISORY COUNCIL, BEYOND CELIAC ADDRESSES THE UNMET NEEDS OF THE CELIAC DISEASE/GLUTEN SENSITIVE COMMUNITIES, WORKS TO ACCELERATE RESEARCH, AND PROMOTES TESTING OF FAMILY MEMBERS OF THOSE WHO HAVE BEEN DIAGNOSED TO RAPIDLY ADVANCE DIAGNOSIS. BEYOND CELIAC PRODUCES RESEARCH SYMPOSIA TO EXPLORE THE CURRENT STATE AND FUTURE DIRECTION OF CELIAC DISEASE AND TO ENCOURAGE PARTICIPATION IN CELIAC DISEASE RESEARCH, INCLUDING CLINICAL TRIALS. BEYOND CELIAC COMMUNICATES THROUGH BEYONDCELIAC.ORG, SOCIAL MEDIA AND MONTHLY E-NEWSLETTERS. IN 2019-2020, BEYOND CELIAC AWARDED THREE MAJOR CELIAC DISEASE RESEARCH GRANTS THAT WILL ACCELERATE RESEARCH IN DIAGNOSIS, TESTING, AND POTENTIAL TREATMENTS. CONTINUED DEVELOPMENT OF GO BEYOND CELIAC, A PATIENT DATABASE, INCLUDES THE LAUNCH OF A MOBILE APP. GO BEYOND CELIAC PROVIDES A DIRECT PATH TO ADVANCING RESEARCH AND THE AVAILABILITY OF CLINICAL TRIAL PARTICIPANTS. BEYOND CELIAC PROVIDES FREE EDUCATIONAL TOOLS ONLINE AND IN PRINTED MATERIALS TO ENHANCE THE PHYSICAL, SOCIAL AND EMOTIONAL WELL-BEING OF THE CELIAC DISEASE/GLUTEN SENSITIVE POPULATIONS OF ALL AGES AND ETHNICITIES. THE ORGANIZATION PARTICIPATES IN MAJOR NATIONAL AND INTERNATIONAL HEALTHCARE CONFERENCES AND SPEAKING ENGAGEMENTS.

THE GREAT KITCHENS PROGRAM TEACHES MEMBERS OF THE RESTAURANT AND FOOD SERVICE INDUSTRY HOW TO SAFELY OFFER GLUTEN-FREE OPTIONS WITH CONFIDENCE. THE AMERICAN CULINARY FEDERATION AND THE ACADEMY OF NUTRITION AND DIETETICS OFFERS MEMBERS OF THESE SOCIETIES' CONTINUING EDUCATION UNITS (CEUS) FOR COMPLETION OF THE GREAT KITCHENS PROGRAM. THE GREAT SCHOOLS, COLLEGES AND CAMPS PROGRAM IS RECOGNIZED AS APPROVED TRAINING FOR THE USDA-MANDATED PROFESSIONAL STANDARDS FOR SCHOOL NUTRITION PROFESSIONALS. SINCE 2008, OVER 8,000 FOOD SERVICE PROFESSIONALS HAVE COMPLETED THE TRAINING PROGRAM. THE GREAT KITCHENS AND SCHOOLS PROGRAMS HAVE TRAINED FOOD SERVICE PROFESSIONALS IN GLUTEN-FREE COOKING AND HANDLING. BEYOND CELIAC ENDORSES THE GLUTEN-FREE CERTIFICATION PROGRAM THAT CERTIFIES FACILITIES COVERING A BROAD RANGE OF BRANDED PRODUCTS THROUGH A RIGOROUS GLUTEN-FREE CERTIFICATION STANDARD.

---

---

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202140579349300804_public.xml