LIVING BEYOND BREAST CANCER
40 MONUMENT ROAD NO 104, BALA CYNWYD, PA 19004 www.lbbc.org

Total Revenue
$5,153,637
Total Expenses
$4,172,786
Net Assets
$15,825,682

Organizations Filed Purposes: THE MISSION OF LIVING BEYOND BREAST CANCER (LBBC) IS TO CONNECT PEOPLE WITH TRUSTED BREAST CANCER INFORMATION AND A COMMUNITY OF SUPPORT. LBBC ADDRESSES THE CURRENT NEEDS OF PEOPLE AFFECTED BY BREAST CANCER, WHETHER THEY ARE NEWLY DIAGNOSED, IN TREATMENT, RECOVERY OR LIVING WITH A HISTORY OF OR MANAGING METASTATIC BREAST CANCER. RESOURCES ARE DEVELOPED IN COLLABORATION WITH THE NATION'S LEADING ONCOLOGISTS, HEALTH PROFESSIONALS AND ALLY ORGANIZATIONS AND ARE DELIVERED BY PEOPLE WHO UNDERSTAND THE PHYSICAL AND EMOTIONAL COMPLEXITIES OF BREAST CANCER. LBBC OFFERS ITS PROGRAMS AND SERVICES IN A VARIETY OF PRINTED AND DIGITAL FORMATS.

TO CONNECT PEOPLE WITH TRUSTED BREAST CANCER INFORMATION AND A COMMUNITY OF SUPPORT

PROGRAMS:CONFERENCES - NATIONAL EVENTS PROVIDING INFORMATION IN LARGE SESSIONS AND INTERACTIVE WORKSHOPS LED BY BREAST CANCER EXPERTS TO HELP WOMEN AND CAREGIVERS MAKE INFORMED DECISIONS.WEBINARS & LIVE WEBCAST PROGRAMS - REGULAR EDUCATION SEMINARS, ACCESSIBLE BY PHONE, ONLINE, OR VIA SOCIAL MEDIA, HIGHLIGHTING SPECIFIC TOPICS RELATED TO BREAST CANCER.FINANCIAL ASSISTANCE - GRANTS UP TO $1,000 ARE PROVIDED TO WOMEN IN TREATMENT FOR BREAST CANCER AND FACING FINANCIAL HARDSHIP IN THE GREATER PHILADELPHIA AREA, DENVER, FORT MYERS, AND TAMPA.BLOGS - LBBC BELIEVES THERE IS POWER IN TELLING A PERSONAL STORY AND SHARING EXPERIENCES, FOR BOTH THE WRITER AND THE READER. BLOGS FEATURE STORIES OF WOMEN AFFECTED BY BREAST CANCER AS WELL AS THOSE OF FAMILY MEMBERS, FRIENDS, AND CAREGIVERS. THEY DETAIL HOW THEY FACED THE COMPLEX MEDICAL, PSYCHOSOCIAL, EMOTIONAL, LEGAL, AND FINANCIAL CHALLENGES OF THE DISEASE.

LBBC'S YOUNG WOMEN'S INITIATIVE:PROVIDES UNIQUE PROGRAMS AND RESOURCES FOR WOMEN DIAGNOSED WITH BREAST CANCER BEFORE AGE 45. THE INITIATIVE BEGAN IN 2011 WHEN LBBC RECEIVED OUR FIRST COOPERATIVE AGREEMENT WITH THE U.S. CENTERS FOR DISEASE CONTROL AND PREVENTION TO EXPAND AND STRENGTHEN OUR PROGRAMS FOR YOUNG WOMEN. IN 2019, LBBC RECEIVED OUR THIRD CONSECUTIVE COOPERATIVE AGREEMENT FOR FIVE YEARS OF ADDITIONAL FUNDING THROUGH THE CDC. THROUGH THIS INITIATIVE WE HAVE DEVELOPED TAILORED RESOURCES AND HEALTH INFORMATION FOR YOUNG WOMEN, INCLUDING WEBINARS, PRINTED PUBLICATIONS, VIDEOS, WEB CONTENT, LIVESTREAMED PROGRAMS, AND CONFERENCE WORKSHOPS. LBBC ALSO HOSTS A CLOSED FACEBOOK GROUP FOR YOUNG WOMEN THAT HAS OVER 2,000 MEMBERS. WE TRAIN OVER 500 HEALTHCARE PROVIDERS TO BETTER MEET THE NEEDS OF THEIR YOUNG BREAST CANCER PATIENTS THROUGH OUR HEALTHCARE PROVIDER WEBINARS EACH YEAR. LBBC'S SURVIVORSHIP SERIES FOR YOUNG WOMEN TRAINS ONCOLOGY NURSE NAVIGATORS TO DELIVER A 4-PART EDUCATION PROGRAM IN THEIR CANCER CENTERS. TO DATE, 26 CANCER CENTERS HAVE IMPLEMENTED THE SURVIVORSHIP SERIES PROGRAM AND COLLECTIVELY THIS PROGRAM HAS REACHED OVER 300 YOUNG WOMEN IMPACTED BY BREAST CANCER. LASTLY, LBBC HAS TRAINED 196 YOUNG WOMEN THROUGH OUR YOUNG ADVOCATE PROGRAM. WE ESTIMATE THAT LBBC HAS REACHED OVER 100,000 YOUNG WOMEN, THEIR FAMILIES AND THE HEALTHCARE PROVIDERS WHO CARE FOR YOUNG WOMEN THROUGH OUR COMBINED EFFORTS IN THE LAST YEAR.

PUBLICATIONS:"GUIDES TO UNDERSTANDING BREAST CANCER AND METASTATIC BREAST CANCER SERIES" - BOOKLETS ADDRESSING YOUR NEEDS WHETHER YOU ARE NEWLY DIAGNOSED, IN TREATMENT, YEARS BEYOND DIAGNOSIS OR LIVING WITH METASTATIC DISEASE.

Executives Listed on Filing

Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing

NameTitleHours Per WeekTotal Salary
Jean Sachs Mss MlspCHIEF EXECUTIVE OFFICER37.5$253,094
Catherine OrmerodVP PROGRAMS & PARTNERSHIPS37.5$145,956
Celeste TerrinoniDIRECTOR OF FINANCE37.5$127,463
Monica SteigerwaldVP DEVELOPMENT37.5$125,513
Joanne BursichCHIEF OF STAFF37.5$124,393
Janine GuglielminoSR. DIR. PROGRAMS & PARTNE37.5$119,780
Crystal ThompsonDIRECTOR2$0
Robert F StilesDIRECTOR2$0
Elizabeth SantarsieroDIRECTOR2$0
Jamil RiversDIRECTOR2$0
Gina J RangeDIRECTOR2$0
Martha MieleDIRECTOR2$0
Pallav Mehta MdDIRECTOR2$0
John Mcdonald EsqDIRECTOR2$0
Felicia JohnsonDIRECTOR2$0
Louis IovinoDIRECTOR2$0
Sandra GrimesDIRECTOR2$0
Jason GeipelDIRECTOR2$0
Marilyn FrankDIRECTOR2$0
Ellen EvansDIRECTOR2$0
Lawana Weldon DumasDIRECTOR2$0
Andi DruckerDIRECTOR2$0
Dana DonofreeDIRECTOR2$0
Janet DohertyDIRECTOR2$0
Gerie DipianoDIRECTOR2$0
Lu Ann CahnDIRECTOR2$0
Tracy BrownDIRECTOR2$0
Meredith Swartz DanteSECRETARY2$0
John RieschTREASURER2$0
Megan RuttVICE CHAIR2$0
Teresa KohlCHAIR2$0

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202101459349301350_public.xml