Organizations Filed Purposes:
TO IMPROVE LIVES AND SEEK CURES FOR THOSE AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES.
FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. DURING 2019, FIRST HOSTED SEVEN PATIENT SUPPORT FORUMS WITH 159 ATTENDEES IN PITTSBURGH, PA, BOISE, ID, SALT LAKE CITY, UT, TORONTO, ON, AUSTIN, TX, ORLANDO, FL AND CHARLESTON, SC. FIRST ALSO PROVIDED CRITICAL INFORMATION TO ITS MEMBERS AND THE GENERAL PUBLIC THROUGH ITS WEBSITE AND CALLS TO ITS KNOWLEDGEABLE STAFF. FIRST ALSO IS ACTIVE ON SOCIAL MEDIA AND FACILITATES SEVERAL FACEBOOK GROUP DISCUSSIONS. PROVIDING ACCURATE, NON-BIASED INFORMATION ON THE LATEST IN RESEARCH, DIAGNOSIS, AND MANAGEMENT OF ICHTHYOSIS AND RELATED SKIN TYPES, FIRST PROVIDES CRITICAL SUPPORT TO THOSE AFFECTED WITH THESE GENETIC CONDITIONS AND THOSE THAT CARE ABOUT THEM.
ONE OF THE CORNERSTONES OF FIRST'S EMPHASIS ON RESEARCH IS ITS SUPPORT OF THE YALE ICHTHYOSIS REGISTRY BOTH FINANCIALLY AND THROUGH ITS PROMOTION ACROSS ITS COMMUNICATION CHANNELS. CRITICAL TO IMPROVING THE MANAGEMENT OF THEIR CONDITION, PARTICIPATION IN THE YALE REGISTRY PROVIDES EACH AFFECTED INDIVIDUAL A GENETIC DIAGNOSIS OF THEIR PARTICULAR TYPE OF ICHTHYOSIS OR OTHER SKIN TYPE. THE REGISTRY IS ALSO VITALLY IMPORTANT TO THE RESEARCH COMMUNITY AND WAS REFERENCED IN NUMEROUS STUDIES AND MANUSCRIPTS IN THE PAST YEAR. THE REGISTRY ALSO SERVES TO PROVIDE RESEARCH OPPORTUNITIES, INCREASED INTEREST IN ICHTHYOSIS AND POSITIVE OPPORTUNITIES FOR TRAINING THE NEXT GENERATION OF PHYSICIAN SCIENTISTS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Moureen Wenik | EXECUTIVE DIRECTOR | 40 | $76,250 |
| Bailey Pretak | BOARD MEMBER | 1 | $0 |
| Beth Hampshire | BOARD MEMBER | 1 | $0 |
| Brittany Craiglow Md | BOARD MEMBER | 1 | $0 |
| Jolie Cina | BOARD MEMBER | 1 | $0 |
| Latanya Benjamin Md | BOARD MEMBER | 1 | $0 |
| Keith Choate Md Phd | BOARD MEMBER | 3 | $0 |
| Denise Gass | BOARD MEMBER | 1 | $0 |
| Kimberly Cole | BOARD MEMBER | 1 | $0 |
| Robert Silverman | BOARD MEMBER | 1 | $0 |
| Gabriele Richard Md | BOARD MEMBER | 1 | $0 |
| Denise Benedetto | BOARD MEMBER | 1 | $0 |
| Brian Stern | SECRETARY | 1 | $0 |
| Sean Mcternan | CHIEF FINANCIAL OFFICER | 2 | $0 |
| Mark Evans | 2ND VICE PRESIDENT | 1 | $0 |
| Tracie Pretak | 1ST VICE PRESIDENT | 1 | $0 |
| Jeff Hoerle | PRESIDENT | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202002309349302190_public.xml