Organizations Filed Purposes:
TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES WORLDWIDE AFFECTED BY GBS, CIDP AND VARIANTS BY 1) PROVIDING A NETWORK FOR ALL PATIENTS, THEIR CAREGIVERS AND FAMILIES 2) PROVIDING PUBLIC AND PROFESSIONAL EDUCATION PROGRAMS WORLDWIDE DESIGNED TO HEIGHTEN AWARENESS AND IMPROVE THE UNDERSTANDING AND TREATMENT OF GBS, CIDP AND VARIANTS. 3) EXPANDING THE FOUNDATION'S ROLE IN SPONSORING RESEARCH AND ENGAGING IN PATIENT ADVOCACY.
IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES AFFECTED BY GUILLAIN-BARRE, CIDP AND VARIANTS. PROVIDE PATIENT SUPPORT, RESEARCH SPONSORSHIP, AND LAY AND PROFESSIONAL EDUCATIONAL PROGRAMS WORLDWIDE.
DISTRIBUTION OF INFORMATION AND LITERATURE TO MEMBERS, HOSPITALS, DOCTORS, AND INDIVIDUALS UPON REQUEST; ORGANIZE AND SPONSOR SYMPOSIUM OR REGIONAL MEETING AND OTHER EDUCATIONAL AND RESEARCH PROGRAMS FOR MEDICAL PROFESSIONAL AND LAYPEOPLE; PROVIDE RESEARCH GRANTS TO FURTHER THE STUDY OF GUILLAIN-BARRE, CIDP AND VARIANTS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Elizabeth Butler | EXECUTIVE DIRECTOR | 40 | $157,456 |
| Camille Yee | CFO (UNTIL AUGUST 2019) | 40 | $96,450 |
| Laura Blair | CFO (BEGINNING AUGUST 2019) | 40 | $35,404 |
| Shane Sumlin | DIRECTOR | 1 | $0 |
| Gail Moore | DIRECTOR | 1 | $0 |
| Elizabeth B Emerson | DIRECTOR | 1 | $0 |
| Kenneth Gorson Md | DIRECTOR | 1 | $0 |
| Nancy Ignazia Disalvo | DIRECTOR | 1 | $0 |
| Joshua Baer | DIRECTOR | 1 | $0 |
| Jim Yadlon | TREASURER | 5 | $0 |
| Russell Walter | SECRETARY | 5 | $0 |
| Matthew La Rocco | VICE PRESIDENT | 5 | $0 |
| Patricia H Blomkwist-Markens | VICE PRESIDENT | 5 | $0 |
| James Crone | PRESIDENT | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001289349301875_public.xml