Organizations Filed Purposes:
To provide funding and support for the research and awareness of rare genetic diseases.
Provided monetary grants for research, treatment, and cure of rare genetic diseases, and conducted awareness campaigns informing the general public on issues related to the treatment and cure of such rare diseases.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Aly Cohen | Director | 1 | $0 |
| Allison Weiss | Secretary | 20 | $0 |
| Jonathan Semel | Treasurer | 1 | $0 |
| Joan Rook | Vice President | 1 | $0 |
| Carter Crum Cfa | Officer | 1 | $0 |
| Dennis Brady | President | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003189349309275_public.xml