CHARCOT-MARIE-TOOTH ASSOCIATION
PO BOX 105, GLENOLDEN, PA 19036 www.cmtausa.org

Total Revenue
$4,754,217
Total Expenses
$4,066,749
Net Assets
$4,348,541

Organizations Filed Purposes: TO SUPPORT THE DEVELOPMENT OF NEW DRUGS TO TREAT CHARCOT-MARIE-TOOTH DISEASE (CMT), TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT AND ULTIMATELY, TO FIND A CURE.

FIGHTING TO END CHARCOT-MARIE-TOOTH DISEASE.

CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING AND TO WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.

CMTA ORGANIZES AND CONDUCTS SUPPORT GROUPS, CONFERENCES AND EDUCATIONAL WEBINARS FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO SHARE KNOWLEDGE AND PROMOTE AWARENESS OF CHARCOT-MARIE-TOOTH DISEASE. CMTA ALSO PUBLISHES A BI-MONTHLY NEWSLETTER AND OTHER EDUCATIONAL PUBLICATIONS WHICH ARE AVAILABLE TO THE PUBLIC. CMTA ALSO MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE.

Executives Listed on Filing

Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing

NameTitleHours Per WeekTotal Salary
Amy GrayCHIEF EXECUTIVE OFFICER40$258,000
Kimberly MageeDIRECTOR OF FINANCE40$77,500
Kevin SamiDIRECTOR0$0
Phyllis SandersDIRECTOR0$0
Chris OuelletteDIRECTOR0$0
Steven O'DonnellDIRECTOR0$0
David NorcomDIRECTOR0$0
Alan KorowitzDIRECTOR0$0
Laura FavaDIRECTOR0$0
Dr Thomas DubenskyDIRECTOR0$0
David ColdironDIRECTOR0$0
Herbert BeronSECRETARY0$0
Gary GasperTREASURER0$0
Gilles BouchardCHAIRMAN0$0

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202001689349301040_public.xml