Organizations Filed Purposes:
CURRENTLY, THE PRIMARY FOCUS OF HTFOD IS THE ORPHAN DISEASE CYSTIC FIBROSIS (CF) WHICH IS A LETHAL GENETIC DISEASE THAT CAUSES EXCESS MUCUS ACCUMULATION IN THE LUNGS CAUSING CHRONIC INFECTIONS AND IN THE PANCREAS CAUSING MALABSORPTION. THERE IS NO CURE FOR CF ALTHOUGH GOOD CLINICAL CARE CAN EXTEND LIFE INTO THE 30S AND 40S. THE GOAL OF HTFOD IS TO ENCOURAGE PHYSICAL FITNESS THROUGH CYCLING IN THOSE LIVING WITH CF, WHICH HAS BEEN SHOWN TO IMPROVE THEIR HEALTH. THE PRIMARY STRATEGY USED TO ACCOMPLISH THIS GOAL IS TO ESTABLISH A VERY LARGE NETWORK OF CYCLISTS FROM ACROSS THE COUNTRY TO FURTHER THE MISSION OF HTFOD FOR THE DISEASE CF. THIS NETWORK OF CYCLISTS HAS BEEN ESTABLISHED UNDER THE PROGRAM OF TEAM CF.
TO HELP THOSE AFFLICTED WITH ORPHAN DISEASES THROUGH A VARIETY OF WAYS INCLUDING PROMOTING FITNESS WHICH CAN IMPROVE PHYSICAL AND EMOTIONAL HEALTH. ORPHAN DISEASES ARE PRIMARILY GENETIC IN NATURE, AFFECT CHILDREN AND YOUNG ADULTS AND ARE USUALLY INCURABLE, DISABLING AND EVENTUALLY LETHAL.
THE PRIMARY STRATEGY USED TO ACCOMPLISH THE ABOVE GOAL IS TO ESTABLISH A VERY LARGE NETWORK OF CYCLISTS FROM ACROSS THE COUNTRY TO FURTHER THE MISSION OF HTFOD FOR THE DISEASE CF. WE HAVE ESTABLISHED THIS NETWORK OF CYCLISTS UNDER THE PROGRAM NAME OF RARE DISEASE CYCLING.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Monique Molloy | TREASURER | 2 | $0 |
| Lisa Wilson | SECRETARY | 2 | $0 |
| Daniel Weiner | DIRECTOR | 0.3 | $0 |
| Jason Green | DIRECTOR | 0.3 | $0 |
| James M Wilson Md Phd | PRESIDENT | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201921359349312417_public.xml