FOR PETES SAKE CANCER RESPITE FOUNDATION
620 W GERMANTOWN PIKE, PLYMOUTH MEETING, PA 19462 www.takeabreakfromcancer.org

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Organizations Filed Purposes: FPS ENABLES CANCER PATIENTS AND THEIR LOVED ONES THE OPPORTUNITY TO STRENGTHEN, DEEPEN AND UNIFY THEIR RELATIONSHIPS BY CREATING UNFORGETTABLE AND LASTING RESPITE EXPERIENCES. IN FY20, FPS PROVIDED SERVICES TO 190 PATIENTS AND THEIR FAMILIES, RESULTING IN 124 RESPITE EXPERIENCES WITH 438 TRAVELERS. ADDITIONALLY, 158 PEOPLE WERE SERVED THROUGH ANCILLARY SERVICES. FPS SERVED A TOTAL OF 596 PEOPLE. THESE NUMBERS REFLECT THE CHANGES MADE TO OUR PROGRAM BECAUSE OF THE COVID-19 PANDEMIC AND OUR NEED TO SUSPEND ANY NEW NOMINATIONS FROM MARCH 2020 THROUGH JUNE 2020. THE TWO MAIN CHANGES TO OUR PROGRAM INCLUDE OUR FOCUSED APPROACH TO COMMUNITY RESPITES WITH OUR TRAVEL PARTNER WOODLOCH AND THE FORMALIZATION OF OUR STAYCATION RESPITE PROGRAM. WHEN THE PANDEMIC OCCURRED, WE HAD NEARLY 50 FAMILIES IN QUE FOR OUR TRAVEL RESPITE PROGRAM. BECAUSE OF OUR SWIFT REACTION, WE WERE ABLE TO SEND 21 FAMILIES ON COMMUNITY RESPITES IN JUNE AND THE REMAINING FAMILIES WERE PART OF THE NEWLY FORMED STAYCATION RES

FPS ENABLES CANCER PATIENTS AND THEIR LOVED ONES THE OPPORTUNITY TO STRENGTHEN, DEEPEN AND UNIFY THEIR RELATIONSHIPS BY CREATING UNFORGETTABLE AND LASTING RESPITE EXPERIENCES THROUGH ITS TRAVEL RESPITES AND STAYCATION RESPITES PROGRAMS.

FAMILIES IN THE FPS RESPITE PROGRAM ARE SUPPORTED IN SEVERAL WAYS. BASED UPON THE HEALTH OF THE PATIENT, THEY EITHER RECEIVED A TRAVEL RESPITE OR A STAYCATION RESPITE. BOTH ARE TAILORED TO THE FAMILY AND THE RELEVANT NEEDS AS DETERMINED BY THE NOMINATOR AND THE FPS PROGRAM COORDINATOR VIA CONVERSATIONS WITH THE PATIENT AND CAREGIVER. FOLLOWING THE RESPITE OR STAYCATION, FPS CONTINUES TO PROVIDE ANCILLARY SUPPORT TO THE PATIENT, CAREGIVER, AND FAMILY. ON THEIR RESPITE EXPERIENCE, PATIENTS TRAVELED TO THE TWO FPS HOMES NEAR ORLANDO, FLORIDA, AND TO OTHER DONATED RESPITE DESTINATIONS ALONG THE NEW JERSEY, NORTH CAROLINA, AND FLORIDA COASTS, AS WELL AS IN THE POCONOS, MAINE AND CARIBBEAN. WE ARE ABLE TO SUPPLEMENT ADDITIONAL STAYS THANKS TO THE GENEROSITY OF 5 TRAVEL PARTNERS AND 15 HOME DONORS. BECAUSE OF THE PANDEMIC, FPS RESTRICTED ITS RESPITES IN THE FINAL FOUR MONTHS TO COMMUNITY RESPITES WITH TRAVEL PARTNER WOODLOCH. AFTER SHUTDOWN IN MARCH AND WITH 50 FAMILIES IN THE PROGRAM AT THIS JUNCTURE, FPS WAS ABLE TO SEND 21 FAMILIES ON COMMUNITY RESPITE TO WOODLOCH IN JUNE, 2020 AND FOR THE REMAINING 29 FAMILIES, WAS ABLE TO PROVIDE A MEANINGFUL STAYCATION RESPITE. TO BE ELIGIBLE FOR THE PROGRAM, A PATIENT MUST BE NOMINATED BY A MEMBER OF HIS/HER ONCOLOGY TEAM. FPS NOMINATORS USE CLINICAL ASSESSMENT FACTORS TO BEST IDENTIFY PATIENTS IN NEED OF RESPITE. NEW NOMINATORS PARTICIPATE IN A SHORT EDUCATIONAL PROGRAM ABOUT THE MISSION OF FPS. SOME NOMINATORS SERVE AS MEMBERS OF THE FPS PROGRAM ADVISORY COMMITTEE, CHARGED WITH OVERSEEING THE ENTIRE PATIENT PROGRAM, PROGRAM GUIDELINES, AND CLINICAL ASSESSMENT FACTORS. OUR TOP THREE NOMINATING MEDICAL INSTITUTIONS INCLUDE CROZER CHESTER MEDICAL CENTER, PENN ABRAMSON CANCER CENTER AND MD ANDERSON CANCER CENTER.

FPS HAS BEEN COLLECTING OUTCOME DATA ON RESPITE FOR ITS COMMUNITY RESPITE MODEL IN A DETAILED WAY, WHICH INCLUDES BOTH PRE- AND POST-RESPITE SURVEYS. THE DATA COLLECTED FROM THESE COMMUNITY RESPITES FORMED THE BASIS FOR A AN ABSTRACT SUBMITTED TO THE AMERICAN SOCIETY OF CLINICAL ONCOLOGISTS (ASCO) ANNUAL MEETING FOR PRESENTATION. FPS IS PROUD TO REPORT ITS ABSTRACT WAS CHOSEN FROM THOUSANDS TO BE PUBLISHED AS PART OF ASCOS VIRTUAL ANNUAL MEETING IN MAY 2020. THE FORMAL ABSTRACT NAME IS INDIVIDUAL AND COMMUNITY RESPITE AS SUPPORTIVE CARE FOR ADULT CANCER PATIENTS, THEIR CAREGIVERS AND THEIR FAMILIES. HTTPS://ASCOPUBS.ORG/DOI/ABS/10.1200/JCO.2020.38.15_SUPPL.E24183 EVALUATION OF THE PROGRAM IS ASSESSED FROM STATISTICS DERIVED FROM BOTH PATIENTS- AND ONCOLOGY EVALUATIONS. SINCE DATA COLLECTION STARTED SINCE 2005, THE OVERALL RATING OF THE IMPROVED ABILITY TO COPE WITH CANCER IS 3.89 ON A SCALE OF ONE TO FOUR. ONE HUNDRED PERCENT OF ALL NOMINATING PROFESSIONALS RECOGNIZE POST-RESPITE IMPROVEMENT IN THE PATIENTS AND PATIENT'S FAMILY/CAREGIVER'S ABILITY TO COPE WITH CANCER. AS PART OF THE FPS COMMITMENT TO TRANSPARENCY, FPS POSTS ITS PATIENT AND NOMINATOR OUTCOME MEASURES ON ITS WEBSITE. FPS ALSO BEGAN A RESEARCH STUDY TO CORRELATE THE SIGNIFICANCE OF RESPITE WITH IMPROVED OUTCOMES RELATED TO COMMUNICATION, TREATMENT, MENTAL HEALTH, RELATIONSHIPS (BOTH WITHIN FAMILY AND TREATMENT TEAM) AND OTHER GENERALIZED DAILY ACTIVITIES. THIS STUDY WAS COMPLETED DURING THE FISCAL YEAR AND THE DATA IS CURRENTLY BEING SCORED AND WILL BE AVAILABLE UPON COMPLETION.

OUR THIRD ACCOMPLISHMENT IS OUR COMMITMENT TO FISCAL RESPONSIBILITY AND NONPROFIT SUSTAINABILITY. IN LIGHT OF THIS, FPS RECEIVED A LARGE CONTRIBUTION TOTALING 300,000, WHICH THE FPS BOARD DESIGNATED A PORTION FOR ENDOWMENT AND LONG-TERM STRATEGIC USE. THESE FUNDS ARE INVESTED FOR LONG-TERM APPRECIATION AND A RESOURCE TO BE USED FOR SUSTAINABILITY AND GROWTH. IN FY20, FPS RECEIVED ALMOST 554,000 OF IN-KIND SUPPORT FOR THE PROGRAM IN THE FORM OF COMPLIMENTARY OFFICE SPACE, PATIENT ACCOMMODATIONS, PROFESSIONAL AND MARKETING SERVICES, RESPITE SUPPLIES AND SPECIAL EVENT GOODS AND SERVICES. NONCASH CONTRIBUTIONS ARE CRITICAL TO THE ORGANIZATION'S SUCCESS AND ALLOW FPS TO BEST USE ITS CONSTITUENT DOLLARS.

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