BE THE MATCH FOUNDATION
500 N 5TH ST, MINNEAPOLIS, MN 554011206 www.bethematch.org

---

Organizations Filed Purposes: BE THE MATCH IS A GLOBAL LEADER WORKING EVERY DAY TO SAVE LIVES THROUGH CELLULAR THERAPY. FOR PEOPLE WITH LIFE-THREATENING BLOOD CANCERS-LIKE LEUKEMIA AND LYMPHOMA-OR OTHER BLOOD DISORDERS LIKE SICKLE CELL, A CURE EXISTS. BE THE MATCH (CONTINUED ON SCHEDULE O)

FUNDRAISING TO SUPPORT MISSION OF THE NMDP/BE THE MATCH: SAVE LIVES THROUGH CELLULAR THERAPY.

PATIENT ASSISTANCE - BE THE MATCH FOUNDATION (BTMF) PROVIDES FINANCIAL ASSISTANCE TO PATIENTS THROUGHOUT EACH STAGE OF THE TRANSPLANT PROCESS. FUNDED FULLY BY PHILANTHROPY, MORE THAN $4.8 MILLION WAS PROVIDED TO PATIENTS IN NEED THIS YEAR. IN FY2020, THE BTM TEAM DEMONSTRATED THEIR COMMITMENT TO PATIENTS BY COMPLETING A PROJECT THAT SIMPLIFIED THE APPLICATION PROCESS FOR TRANSPLANT CENTER COORDINATORS, PATIENTS AND THEIR FAMILIES. THESE IMPROVEMENTS TO THE APPLICATION REMOVE ANOTHER BARRIER FOR TRANSPLANT PATIENTS, BY REMOVING THE NEED FOR A PRE-APPROVAL FOR SEARCH ASSISTANCE FUNDS. (CONTINUED ON SCHEDULE O)TWO GRANT PROGRAMS SUPPORT PATIENTS PRE-TRANSPLANT WHO HAVE INSURANCE AND FINANCIAL BARRIERS THAT DELAY OR PREVENT THEM FROM FINDING A DONOR. THE FAMILY TYPING GRANT (FTG) PAYS LABS, ON BEHALF OF THE PATIENTS, FOR THE TYPING OF FIRST DEGREE RELATIVES NEEDED TO IDENTIFY IF THERE IS A DONOR IN THE FAMILY. THE FTG HELPED 79 PATIENTS THIS FY2020. FOR THOSE WITHOUT A DONOR IN THEIR FAMILY, SEARCH ASSISTANCE FUNDS (SAF) HELPS PATIENTS START THE UNRELATED DONOR SEARCH PROCESS BY GIVING TRANSPLANT CENTERS A GUARANTEE OF PAYMENT FOR SPECIFIC SEARCH AND/OR PROCUREMENT COSTS. THERE WERE 402 PATIENTS APPROVED FOR SAF THIS FY2020. BTMF ALSO PROVIDES FUNDING FOR TWO GRANTS TO HELP WITH THE MANY UNCOVERED EXTRA EXPENSES PATIENTS EXPERIENCE BEFORE AND AFTER A TRANSPLANT. THE TRANSPLANT SUPPORT ASSISTANCE (TSA) GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED FAMILIES BOTH PRE AND POST-TRANSPLANT. TSA HELPS WITH EXTRA OUT OF POCKET EXPENSES, SUCH AS TRANSPORTATION, TEMPORARY RELOCATION, CO-PAYS, AND INSURANCE PREMIUMS. THIS YEAR 1,435 TSA AWARDS WERE GRANTED WITH THE AVERAGE AWARD BEING $2,000 TO PATIENTS WHO WERE BOTH PRE AND POST-TRANPLANT.IN MAY 2020, BTMF OPENED A NEW, TEMPORARY GRANT TO MEET THE EVOLVING NEEDS OF PATIENTS DURING A GLOBAL PANDEMIC. THE COVID-19 RELIEF GRANT PROVIDES A ONE TIME $500 AWARD TO AID IN COVERING MEDICAL AND NON-MEDICAL EXPENSES DUE TO FINANCIAL HARDSHIP RELATED TO COVID. THIS YEAR 578 COVID AWARDS WERE GRANTED TO PATIENTS WHO WERE BOTH PRE AND POST-TRANSPLANT. THE JOHN AND CARYN CAMIOLO SURVIVORSHIP GRANT (CAM) PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS WHO ARE BEYOND ONE YEAR POST-TRANSPLANT AND WHO HAVE BEEN DIAGNOSED WITH CHRONIC GRAFT-VERSUS-HOST DISEASE. CAM HELPS WITH UNCOVERED COSTS OF TREATMENT AND PRESCRIPTIONS. THIS FY2020, 104 PATIENTS WERE HELPED THROUGH THE CAM PROGRAM WITH THE AVERAGE GRANT BEING $750.THE CHELL TRAVEL GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS WHO NEED ASSISTANCE WITH TRAVEL TO/FROM CLINICAL TRIALS THAT TREAT BLOOD CANCERS AND DISORDERS TREATABLE BY TRANSPLANT. THIS YEAR 104 CHELL TRAVEL GRANTS WERE AWARDED WITH THE AVERAGE AWARD AMOUNT BEING $2,000. THE IRA AND DIANA RIKLIS CRISIS GRANT PROVIDES DIRECT FINANICAL ASSISTANCE TO QUALIFIED PATIENTS POST-TRANSPLANT WHO HAVE EXPERIENCED A SIGNIFICANT CRISIS EVENT IMPACTING PATIENT'S POST TRANSPLANT CARE. THIS FY2020, 4 PATIENTS WERE HELPED THROUGH THE RIKLIS CRISIS PROGRAM WITH EACH AWARD AMOUNT BEING $10,000.

RESEARCH - RESEARCH INNOVATIONS ARE CRITICAL TO EXPANDING TREATMENT TO MORE PATIENTS AND IMPROVING OUTCOMES. EACH YEAR, BTMF IS PROUD TO INVEST IN RESEARCH THROUGH:THE AMY STRELZER MANASEVIT RESEARCH PROGRAM (AMY PROGRAM): OUR FLAGSHIP RESEARCH FELLOWSHIP, THE AMY PROGRAM FUNDS EARLY CAREER INVESTIGATORS FOCUSED ON ADVANCES IN THE PREVENTION AND TREATMENT OF POST-TRANSPLANT COMPLICATIONS (E.G. GRAFT-VERSUS-HOST-DISEASE AND INFECTION). IN FY2020, WE FUNDED THE WORK OF 18 AMY SCHOLARS. AMY SCHOLARS HAVE GONE ON TO BECOME LEADERS IN THE FIELD, PURSUING SCIENTIFIC ADVANCES THAT HELP BE THE MATCH PATIENTS LIVE LONGER, HEALTHIER LIVES. SINCE 1998, BTMF HAS INVESTED NEARLY $11 MILLION TO HELP (CONTINUED ON SCHEDULE O) LAUNCH THE CAREERS OF 44 YOUNG PHYSICIAN-SCIENTISTS. AFTER RECEIVING THEIR AMY SCHOLAR AWARDS, THIS GROUP HAS GONE ON TO WIN MORE THAN $110 MILLION IN SUBSEQUENT FUNDING TO PURSUE THE DISCOVERIES THAT WILL HELP PATIENTS LIVE LONGER, HEALTHIER LIVES AFTER TRANSPLANT. TODAY, THE AMY STRELZER MANASEVIT RESEARCH PROGRAM FOR THE STUDY OF POST-TRANSPLANT COMPLICATIONS IS ONE OF THE LARGEST AND MOST COVETED FELLOWSHIPS IN THE FIELD OF TRANSPLANTATION.ANTHONY NOLAN TRUST: PROVIDE SUPPORT TO THE ANTHONY NOLAN RESEARCH INSTITUTE TO CONTINUE DEVELOPMENT AND MAINTENANCE OF AN HLA CLASS I AND II SEQUENCE DATABASE AND PROVISION OF HLA CLASS I AND II SEQUENCE INFORMATION.

RECRUITMENT - THE BE THE MATCH REGISTRY PROVIDES THE MOST DIVERSE LISTING OF POTENTIAL DONORS AND CORD BLOOD UNITS IN THE WORLD. WITH 23 MILLION POTENTIAL DONORS AND 500,000 CORD BLOOD UNITS, OUR GROWING REGISTRY IS HELPING PATIENTS GET THE TRANSPLANT THEY NEED. IN FY2020, OVER 325,000 NEW POTENTIAL DONORS WERE ADDED TO THE BE THE MATCH REGISTRY. ALTHOUGH THERE ARE MILLIONS ON THE REGISTRY, PATIENTS SOMETIMES STILL CANNOT FIND A MATCH. THIS IS DUE IN PART TO THE PATIENT'S ETHNIC BACKGROUND. ON AVERAGE, A PATIENT'S LIKELIHOOD OF FINDING A MATCH ON THE BE THE MATCH REGISTRY RANGES FROM 29% TO 79% DEPENDING ON THE ETHNIC BACKGROUND. SOME ETHNIC GROUPS HAVE MORE COMPLEX TISSUE TYPES THAN OTHERS, SO A PERSON'S BEST CHANCE OF FINDING A DONOR IS WITH SOMEONE OF THE SAME ETHNIC (CONTINUED ON SCHEDULE O) BACKGROUND. THE IMPORTANCE OF INCREASING DIVERSITY ON THE REGISTRY IS AN ORGANIZATION GOAL AND PRIORITY AT BE THE MATCH.BE THE MATCH MEXICO WAS A NEW INITIATIVE IN 2017. WITH THE GOAL OF REACHING MORE PATIENTS AND INCREASING DIVERSITY ON THE REGISTRY, WORK HAS BEGUN TO CREATE A NETWORK OF DONOR CENTERS AND FUNDRAISING PARTNERS IN MEXICO.

---

---

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202101319349302630_public.xml