Organizations Filed Purposes:
Committed to serving as a collaborative center of education and support for children and families living with neurological conditions. CNF's Board of Directors has established programmatic priorities in the following areas, including transitions of care, peer support, disease education and awareness, collaborative models of advocacy, grants and scholarships, and improving communication between health care provider and patients/ caregivers.
Research Grants: Since 2001, CNF has awarded over $ 4 million dollars to research endeavors of 45 young investigators, aimed at identifying treatments and cures for pediatric neurological diseases. Grants support translational, clinical, or basic research by child neurologists early in their academic careers. In 2019, CNF awarded two $100,000 research grants.
Community Support: Through CNF's collaborative, multi-stakeholder framework, various community support efforts are offered including patient/caregiver education programming, clinical tools, resource navigation, and a peer support virtual network. Since 2017, CNF's peer support network has served 811 families in 50 states and 75 countries. In 2019, CNF served 235 families through the peer support network. Additionally, CNF provides community and family grants to support these efforts. CNF interfaces with the larger community via community events and exhibitions, web site, social media, and webinars.
Community Education: CNF serves as a convener in the child neurology community related to education and advocacy efforts, demonstrated by infantile spasms action network (25 national and international organizations collaboratively advocating for disease awareness), Transition Project Advisory Committee (TPAC; providers, caregivers and industry collaborating around the issues of transitioning young adults into the adult health care system); and an annual education initiatives (topics include sudden unexpected death in epilepsy, disruptive and harmful behavior management).
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Amy Brin | Director Non-Voting Member Exective Director | 45 | $195,932 |
| Dr W Donald Shields | Honorary Director of BOD | 1 | $0 |
| Roger Larson | Ex-Officio Director | 1 | $0 |
| Dr Phillip Pearl | Ex-Officio Director | 1 | $0 |
| Dr Jonathan Mink | Ex-Officio Director | 1 | $0 |
| Dr Scott Pomeroy | President | 1 | $0 |
| Dr Ann Tilton | Past-President | 1 | $0 |
| Dr Anup Patel | President-Elect | 0 | $0 |
| Dr Shaun Hussain | Secretary | 1 | $0 |
| Stephen Peters | Treasurer | 1 | $0 |
| Dr M Scott Perry | Director | 1 | $0 |
| Donald Pearl | Director | 1 | $0 |
| Dr Mary Zupanc | Director | 1 | $0 |
| Sue Yudovin | Director | 1 | $0 |
| Sandra Cushner Weinstein | Director | 1 | $0 |
| Dr Thomas Langan | Director | 1 | $0 |
| Julie Gilbert | Director | 1 | $0 |
| John Hutchins | Director | 1 | $0 |
| Matthew S Collier | Director | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202021489349300012_public.xml