Organizations Filed Purposes:
CHILDREN'S CANCER RESEARCH FUND IS A NATIONAL ORGANIZATION DEDICATED TO CURING CHILDHOOD CANCER BY INVESTING IN THE MOST EFFECTIVE RESEARCH, COLLABORATING WITH THE MOST TALENTED MINDS, INSPIRING AND EDUCATING ADVOCATES WORLDWIDE TO TAKE ACTION AND SUPPORTING FAMILIES.
FUND RESEARCH TO PREVENT & CURE CHILDHOOD CANCERS, PROVIDE PATIENT SERVICES AND SUPPORT EDUCATION
RESEARCH PROGRAMMOST NOTABLY, CCRF RESEARCH GRANTS HAVE CONTRIBUTED SIGNIFICANTLY TO A NEW CLINICAL TRIAL FOR CHILDREN WITH BRAIN TUMORS SET TO ENROLL PATIENTS IN 2021. IN ADDITION, A NEW CLINICAL TRIAL FOR OSTEOSARCOMA IS ALSO SLATED TO START. BOTH TRIALS PROVIDE NEW OPTIONS FOR PATIENTS WITH CANCERS WHERE NEW THERAPIES HAVE NOT BEEN READILY AVAILABLE. IN ADDITION, WE AWARDED $10.5 MILLION IN NEW GRANTS FOR LEADING RESEARCH INITIATIVES AROUND THE COUNTRY. THE AWARDS ARE FOCUSED IN THE FOLLOWING AREAS:HARD TO TREAT CANCERS - WE FUEL RESEARCH FOR CANCERS WHERE SURVIVAL RATES HAVE STALLED OR NOT IMPROVED IN YEARS. THIS INCLUDES AGGRESSIVE AND DEADLY CANCERS LIKE BRAIN TUMORS, SARCOMAS AND SPECIFIC TYPES OF LEUKEMIAS, JUST TO NAME A FEW. SURVIVORSHIP - MANY CHILDREN WHO SURVIVE CANCER DEAL WITH THE LATE EFFECTS OF CHEMOTHERAPY, RADIATION OR SURGERY, WHICH RANGE FROM HEARING LOSS TO HEART CONDITIONS TO INFERTILITY. MORE RESEARCH IS NEEDED IN HOW TO EFFECTIVELY TREAT YOUNG ADULTS POST-CANCER AND CURB OR ELIMINATE THESE LATE EFFECTS, ESPECIALLY FOR NEW IMMUNE-BASED AND TARGETED THERAPIES DEVELOPED IN RECENT YEARS.EMERGING SCIENTISTS - WE IDENTIFY AND SUPPORT HIGHLY QUALIFIED RESEARCHERS EARLY IN THEIR CAREERS, HELPING THEM ESTABLISH THEIR LABS AND COMPLETE INITIAL RESEARCH, WHICH MAKES IT POSSIBLE FOR THEM RECEIVE THE FEDERAL GRANTS NECESSARY TO BRING NEW THERAPIES AND CURES TO CHILDREN.INFRASTRUCTURE AND DATA - WE SUPPORT INITIATIVES THAT HELP RESEARCHERS HARNESS THE POWER OF RICH, COMPREHENSIVE DATA AND INSPIRE COLLABORATION ACROSS THE PEDIATRIC CANCER COMMUNITY.
EDUCATION AND AWARENESS PROGRAMGENERATING AWARENESS ABOUT THE NEED FOR CHILDHOOD CANCER, AND PROVIDING EDUCATIONAL RESOURCES FOR RESEARCHERS, ARE KEY PARTS OF OUR MISSION. WE REACH MILLIONS OF PEOPLE THROUGH OUR WEBSITE, DIGITAL AND SOCIAL MEDIA PLATFORMS, AND IN-KIND TELEVISION, RADIO AND PRINT ADVERTISING TO SHARE THE STORIES OF KIDS, FAMILIES AND RESEARCHERS. WE ALSO FUND PEDIATRIC HEMATOLOGY-ONCOLOGY AND BMT FELLOWSHIP PROGRAMS, WHICH HELPS RECRUIT AND RETAIN THE BRIGHTEST MINDS IN THE FIELD OF PEDIATRIC CANCER RESEARCH. WE'RE PROUD TO SUPPORT THE MARK E. NESBIT LECTURESHIP IN PEDIATRIC ONCOLOGY AND THE NORMA K.C. RAMSAY, MD, DISTINGUISHED VISITING PROFESSOR LECTURESHIP SERIES. BOTH OF THESE BRING NATIONALLY AND INTERNATIONALLY RECOGNIZED CHILDHOOD CANCER EXPERTS TO MINNESOTA TO SPEAK ON CURRENT CLINICAL AND RESEARCH ISSUES, AND TO BUILD NEW RESEARCH COLLABORATIONS.
PATIENT AND FAMILY SERVICES PROGRAMCHILDHOOD CANCER PATIENTS AND FAMILIES OFTEN HAVE CARE NEEDS THAT EXTEND BEYOND MEDICAL TREATMENT. EMOTIONAL SUPPORT AND ASSISTANCE WITH THE NEEDS OF EVERYDAY LIFE ARE JUST A FEW RESOURCES THAT HELP SUPPORT INDIVIDUALS ACTIVELY BATTLING CANCER. HERE ARE A FEW OF THE HIGHLIGHTS FROM OUR PROGRAM:- BIG DREAMS VIRTUAL REALITY TOUR: JAMES ORRIGO, A SPECIALIST IN MOTIVATIONAL ENTERTAINMENT, LEVERAGED VIRTUAL REALITY TECHNOLOGY TO "MEET" WITH PEDIATRIC CANCER PATIENTS TO WRITE SONGS AND CREATE MUSIC VIDEOS. THE UNIQUE AND CREATIVE PROGRAM GARNERED A ZOOM INNOVATION AWARD IN 2020. FEEDBACK FROM PARENTS AND KIDS SHOW THAT THIS EXPERIENCE IS INVALUABLE DURING A TIME OF STRESS, ISOLATION AND UNCERTAINTY. - MOMCOLOGY: OUR FUNDING PROVIDED PRIMARY CAREGIVERS THE OPPORTUNITY TO CONNECT AND GAIN VALUABLE SUPPORT FROM PEERS AROUND THE COUNTRY. PROGRAMMING INCLUDED VIRTUAL RESTORATIVE AND EDUCATIONAL RETREATS, ONLINE SUPPORT GROUP MEETINGS AND PEER SUPPORT RESEARCH. - C.C. BEAR: 433 BEARS WERE DISTRIBUTED TO CHILDREN AROUND THE COUNTRY BATTLING CANCER, SPREADING A MESSAGE OF HOPE AND SUPPORT FROM DONORS.- CARE PARTNERS: UNIVERSITY OF MINNESOTA MASONIC CHILDREN'S HOSPITAL STAFF FUNDED BY CCRF WERE ABLE TO SUPPORT PATIENTS AND THEIR FAMILIES WITH NON-MEDICAL NEEDS DURING THEIR INPATIENT STAYS. STAFF ALSO DEVELOPED A VIRTUAL VOLUNTEER PROGRAM TO REPLACE IN-PERSON VOLUNTEER SUPPORT AMIDST THE PANDEMIC.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Darla Nemec | DIRECTOR OF FINANCE & OPERATIONS | 40 | $142,250 |
| Haivy Thompson | VICE PRESIDENT, MISSION & MARKETING | 40 | $141,710 |
| John Hallberg | CHIEF EXECUTIVE OFFICER THRU 7/24/20 | 40 | $129,922 |
| Kenna Dooley | DIRECTOR OF DEVEL & DONOR RELATIONS | 40 | $120,536 |
| Laura Grant | DIRECTOR OF EVENTS & PARTNERSHIPS | 40 | $100,297 |
| Daniel Gumnit | CHIEF EXECUTIVE OFFICER BEG 8/10/20 | 40 | $70,617 |
| Jen Wilson | DIRECTOR | 1 | $0 |
| Chris Toppin | DIRECTOR | 1 | $0 |
| Greg Soukup | DIRECTOR | 1 | $0 |
| Dan Seeman | DIRECTOR | 1 | $0 |
| Beth Monsrud | DIRECTOR | 1 | $0 |
| Charlie R Manzoni Jr | DIRECTOR | 1 | $0 |
| Pete Leacock | DIRECTOR | 1 | $0 |
| Kris Larson | DIRECTOR | 1 | $0 |
| Dawn Lamm | DIRECTOR | 1 | $0 |
| Molly Kinsella | DIRECTOR | 1 | $0 |
| Matt Hedman | DIRECTOR | 1 | $0 |
| Meghan Harris | DIRECTOR | 1 | $0 |
| Jon Halper | DIRECTOR | 1 | $0 |
| Carol Grannis | DIRECTOR | 1 | $0 |
| John Golden | DIRECTOR | 1 | $0 |
| Barb Farrell | DIRECTOR | 1 | $0 |
| Peter Dorow | DIRECTOR | 1 | $0 |
| Ingrid Culp | DIRECTOR | 1 | $0 |
| Susan Doherty | SECRETARY | 1 | $0 |
| Dan Bartholet | TREASURER | 1 | $0 |
| Michelle Johnson | CHAIRPERSON | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202111339349302516_public.xml