Organizations Filed Purposes:
TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD).
CONDUCTED REGIONAL SUPPORT MEETINGS TO PROVIDE INFORMATION TO INDIVIDUALS AFFLICTED WITH PCD.
DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMATION AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFROMATION.
PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Michele Manion | EXEC. DIR., | 40 | $117,000 |
| Carey Kauffman | DIRECTOR | 1 | $68,538 |
| Lynn Ehrne | SECRETARY | 40 | $46,264 |
| Heidi Bjornson-Pennell | DIRECTOR | 1 | $0 |
| Carrie Willis | DIRECTOR | 1 | $0 |
| Tori Eastvold | DIRECTOR | 1 | $0 |
| Bill Anton | VICE CHAIR | 1 | $0 |
| Amy Kovler | CHAIR, TREAS | 5 | $0 |
| Gary Joyner | CHAIR EMERIT | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202021329349301907_public.xml