Organizations Filed Purposes:
THE ARM FOUNDATION SERVES AS THE EDUCATIONAL AND INFORMATION RESOURCE ON ISSUES FUNDAMENTAL TO MAKING GENE AND CELL THERAPIES, TISSUE-ENGINEERED PRODUCTS AND OTHER REGENERATIVE MEDICINE TREATMENTS AVAILABLE TO PATIENTS. BY EXAMINING, QUANTIFYING, CLARIFYING AND INFORMING STAKEHOLDERS OF THE CLINICAL AND SOCIETAL BENEFITS OF THESE THERAPIES, AS WELL AS CONVENING DISCUSSIONS TO RAISE AWARENESS ABOUT THE SECTORS PROGRESS, CHALLENGES AND RESULTS, THE FOUNDATION ACCELERATES PATIENT ACCESS TO SAFE, EFFICACIOUS AND POTENTIALLY CURATIVE THERAPIES.
GENE MEDICINE EDUCATION - A STRATEGIC COMMUNICATIONS PROGRAM DESIGNED TO INCREASE AWARENESS AND UNDERSTANDING OF CELL AND GENE THERAPIES AS TRANSFORMATIVE MEDICINES AND IMPORTANT THERAPEUTIC OPTIONS FOR TREATING DISEASE AND EQUIP PEOPLE TO MAKE INFORMED DECISIONS ABOUT CELL AND GENE MEDICINE. THIS INFORMATION IS MADE AVAILABLE TO PATIENTS, CAREGIVERS, PROVIDERS, AND THE GENERAL PUBLIC.
HEALTH & ECONOMIC IMPACT ANALYSIS - DEVELOP AN IN-DEPTH ANALYSIS OF CELL AND GENE THERAPY AND OTHER REGENERATIVE MEDICINES ON THE NATIONAL AND INTERNATIONAL HEALTHCARE ECONOMIES TO SUPPORT MARKET ACCESS INITIATIVES AND PUBLIC AWARENESS. COMMUNICATING THE SOCIETAL AND ECONOMIC VALUE OF RM THERAPIES THROUGH DATA REPORTING AND STRATEGIC ENGAGEMENT WITH HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC.
CONVENING OF PATIENT GROUP LEADERSHIP WORKSHOP FOR ROUGHLY 25 LEADERS FROM THE PATIENT COMMUNITY TO DISCUSS INITIATIVES TO HELP THEM EDUCATE THEIR CONSTITUENTS ABOUT THE BENEFITS OF CELL AND GENE MEDICINE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Claudia Zylberberg | DIRECTOR | 1 | $0 |
| Phil Vanek | DIRECTOR | 1 | $0 |
| Marshall Summar | DIRECTOR | 1 | $0 |
| Jennifer Mound Smoter | DIRECTOR | 1 | $0 |
| Robin Smith | DIRECTOR | 1 | $0 |
| Frank Sasinowski | DIRECTOR | 1 | $0 |
| Martha Rook | DIRECTOR | 1 | $0 |
| Brock Reeve | DIRECTOR | 1 | $0 |
| Dennis Purcell | DIRECTOR | 1 | $0 |
| Maria Millan | DIRECTOR | 1 | $0 |
| Adrian Mckemey | DIRECTOR | 1 | $0 |
| Lin Mac Master | DIRECTOR | 1 | $0 |
| Janet Lambert | DIRECTOR | 1 | $0 |
| Bethany Kraynack | DIRECTOR | 1 | $0 |
| Brett Kopelan | DIRECTOR | 1 | $0 |
| Karin Hehenberger | DIRECTOR | 1 | $0 |
| Alison Finger | DIRECTOR | 1 | $0 |
| Ellen Feigal | DIRECTOR | 1 | $0 |
| Don Gibbons | DIRECTOR | 1 | $0 |
| Amy Duross | DIRECTOR | 1 | $0 |
| Cindy Collins | DIRECTOR | 1 | $0 |
| Nicole Boice | DIRECTOR | 1 | $0 |
| Morrie Ruffin | EXECUTIVE DI | 13 | $0 |
| David Nagler | TREASURER | 3 | $0 |
| Stewart Parker | CHAIR | 3 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013089349302316_public.xml