Organizations Filed Purposes:
To provide information, education, support and awareness about Neurofibromatosis.
Create a community of support for those affected by neurofibromatosis through education, advocacy, coalitions and promoting research for treatments and a cure. Our goal is to be the primary source of information for neurofibromatosis in the Mid-Atlantic region.
The organization is dedicated to helping people with neurofibromatosis and their loved ones make sense of the complex medical and personal information about this disorder. The organization provides reliable, complete and up to date information about neurofibromatosis and provides volunteer Support Advocates who reach out to others via telephone or email; an active and daily updated social network; a 24/7 dedicated chat room and an informative on-line education system for people with NF, caregivers, and the general public.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| John Dobson | Executive Director | 20 | $6,875 |
| Megan Leaf | Director | 0 | $0 |
| Sandee Perry | Director | 0 | $0 |
| Rivka Glaser | Director | 0 | $0 |
| Beverly Dobson | Director | 0 | $0 |
| Ellen Stein | President | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202121479349300727_public.xml