Organizations Filed Purposes:
To advocate for people affected by sickle cell conditions and empower community-based organizations.
HRSA: To provide a newborn screening follow-up program that ensures access to care for individuals with sickle cell disease (SCD). It includes providing follow-up services: Education, counseling, lead advocacy initiatives, and access to medical home.
SCDAA: SCDAA and its member organizations engage in community outreach and program efforts throughout the United States and Canada. These efforts include but not limited to: Educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management, and psychosocial support for individuals and families impacted by sickle cell disease.
PCORI: To develop a national advocate network of sickle cell disease patients, families, caregivers and other stakeholders experts that can partner with clinicians and researchers to design, implement and eventually disseminate patient centered outcomes research and comparative effectiveness research (PCOR/CER) projects that improve outcomes to patients with sickle cell disease (SCD).
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Beverley Francis-Gibson | President/CEO | 45 | $144,000 |
| Leroy Hughes | Vice President | 45 | $106,090 |
| Tanique Mitchell | Member | 5 | $0 |
| Thomas L Johnson Jd | Member | 5 | $0 |
| Gwendolyn Polesdo | Member | 5 | $0 |
| Bernie Lawrence-Watkins | Member | 5 | $0 |
| Crystal A Riley Mha Mba | Member | 5 | $0 |
| Wanda Whitten-Shurney Md | Member | 5 | $0 |
| Christopher Hollins Mba | Member | 5 | $0 |
| Regina Hartfield | Member | 5 | $0 |
| Kim Smith-Whitley Md | Member | 5 | $0 |
| Lennette J Benjamin Md | Board Member Emeritus | 5 | $0 |
| Lewis Hsu Md | Vice Chief Medical Officer | 5 | $0 |
| Biree Andemarian Md | Chief Medical Officer | 5 | $0 |
| Genice T Nelson Dnp Aprn | Secretary | 5 | $0 |
| Jakela Parker | Vice Chair | 5 | $0 |
| Ed Folwers | Treasurer | 5 | $0 |
| David N Braxton Phd | Chair | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023029349301767_public.xml