Organizations Filed Purposes:
TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.
SEE PART III, LINE 1.
PROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Julie Powers | SENIOR DIRECTOR, PATIENT ADVOCACY | 40 | $108,146 |
| Alice Houk | SENIOR DIRECTOR, HEALTH PROFESSIONAL PROGRAMS | 40 | $103,417 |
| Neil Horikoshi | CEO | 40 | $98,844 |
| Rebecca Doane | DIRECTOR (FROM NOV. 2019) | 1 | $0 |
| Saira Sufi | DIRECTOR (FROM NOV. 2019) | 1 | $0 |
| Judy Paulette | DIRECTOR | 1 | $0 |
| Melanie Marquez | DIRECTOR | 1 | $0 |
| Bart Fisher | DIRECTOR | 1 | $0 |
| James Gajewski | DIRECTOR | 1 | $0 |
| Deborah Cook | DIRECTOR | 1 | $0 |
| Stephanie Dillon Hamm | DIRECTOR | 1 | $0 |
| Tony San Filippo | TREASURER | 1 | $0 |
| Stephen King | SECRETARY | 1 | $0 |
| Harsha Murthy | VICE CHAIR | 1 | $0 |
| Kevin Lyons-Tarr | CHAIR | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202021539349300927_public.xml