Organizations Filed Purposes:
TO PROVIDE ASSISTANCE TO PATIENTS AND THEIR FAMILIES UNDERGOING TREATMENT AT THE NIH CLINICAL CENTER.
PATIENT SUPPORT SERVICES - FRIENDS AT NIH PROVIDES HOPE BY GIVING EMOTIONAL AND FINANCIAL SUPPORT TO PATIENTS RECEIVING GROUNDBREAKING AND LIFE-SAVING TREATMENT AT THE CLINICAL CENTER. FRIENDS AT NIH HELPS PATIENTS COVER THEIR ESSENTIAL NEEDS SO THAT THEY CAN FOCUS ON RECOVERY. THIS INCLUDES THE PROVISION OF SHELTER NEAR THE CLINICAL CENTER DURING TREATMENT AND ASSISTANCE WITH HOUSING COSTS; A SUPPORT SYSTEM FOR PATIENT FAMILIES AND CAREGIVERS TO ENABLE THEM TO TRAVEL TO AND FROM THE CLINICAL CENTER; AND AN ALLOWANCE TO COVER MEALS, UTILITIES, PATIENT INSURANCE, MEDICAL AND NON-MEDICAL EXPENSES, AND OTHER COSTS INCURRED DURING THE PATIENT'S STAY AT THE CLINICAL CENTER.
RP AWARENESS AND SUPPORT - RELAPSING POLYCHONDRITIS (RP) IS A RARE AUTOIMMUNE DISEASE CHARACTERIZED BY RECURRENT WIDESPREAD INFLAMMATION OF DIFFERENT BODY AREAS, IN PARTICULARLY, CARTILAGE. FRIENDS AT NIH HAS PARTNERED WITH THE RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION TO RAISE MONEY TO PROVIDE TRAVEL AND LODGING FOR PATIENTS RECEIVING TREATMENT FOR THIS DISEASE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Heidi Williams | CHIEF EXECUTIVE OFFICER | 40 | $91,564 |
| Sandeep Somaiya | DIRECTOR | 4 | $0 |
| Jay Shah | DIRECTOR, BEGINNING 10/2019 | 4 | $0 |
| Jerry Sachs | DIRECTOR | 4 | $0 |
| Andrew Derr | DIRECTOR, BEGINNING 11/2019 | 4 | $0 |
| Jerome Schnydman | DIRECTOR | 4 | $0 |
| Catlin O'Shaughnessy Coffrin | DIRECTOR, UNTIL JUNE 2019 | 4 | $0 |
| Stephen Mcgowan | TREASURER | 4 | $0 |
| Brooke Betts | 2ND VP | 4 | $0 |
| Beth Cooper | 1ST VP | 4 | $0 |
| Roger Longenderfer | PRESIDENT | 4 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033119349300328_public.xml