Organizations Filed Purposes:
THE ALLIANCE FOR PROTON THERAPY ACCESS'S MISSION IS TO ATTAIN A FAST, FAIR, AND TRANSPARENT INSURANCE REVIEW PROCESS FOR CANCER PATIENTS IN NEED OF PROTON THERAPY. WE SUPPORT PATIENTS, FAMILIES, CAREGIVERS TO SPEAK OUT AND INFLUENCE DECISION-MAKERS THROUGH GRASSROOTS ACTIONS, EARNED MEDIA AND SOCIAL MEDIA.
CONTINUED HIGHLIGHTING AN ADVOCACY REPORT CREATED IN 2018 THAT HIGHLIGHTS THE COST TO PATIENTS OF THE BROKEN INSURANCE REVIEW AND APPROVAL PROCESS AND HIGHLIGHTING PATIENT'S STORIES. GREW OUR DATABASE TO 3,950 ADVOCATES IN ALL 50 STATES AND EXPANDED ALLIANCE SOCIAL MEDIA NETWORK AND ATTRACTED NEW PATIENT ADVOCATES TO BUILD PUBLIC AWARENESS. CONTINUED TO DEPLOY AN ADVOCACY TOOLKIT WITH STEP-BY-STEP GUIDES TO HELP EMPOWER ADVOCATES WHO WANT TO JOIN THE CAMPAIGN AND SPEAK OUT ABOUT THE VALUE OF PROTON THERAPY. THE GUIDES PROVIDE TIPS AND INSTRUCTIONS ON HOW TO TELL THEIR STORY, TALK TO LAWMAKERS, TALK TO THE MEDIA AND SPEAK WITH THEIR SOCIAL MEDIA NETWORK. WORKED WITH PATIENT ADVOCATES AND CAREGIVERS TO GENERATE OP-EDS AND NEWS STORIES ABOUT HOW PROTON THERAPY BENEFITED THEM AND THE STRUGGLES THEY AND OTHERS HAVE ACCESSING THE CANCER TREATMENT.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Stacy Stordahl | SECRETARY | 1 | $0 |
| Daniel Smith | EXECUTIVE DIRECTOR | 5 | $0 |
| Megan Niese | DIRECTOR | 1 | $0 |
| Cathleen Mcburney | DIRECTOR | 1 | $0 |
| Jeroen Cammeraat | DIRECTOR | 1 | $0 |
| Tina Yu | DIRECTOR | 1 | $0 |
| Hiroyuki Itami | DIRECTOR | 1 | $0 |
| Steven J Frank | DIRECTOR | 1 | $0 |
| Kolleen Kennedy | BOARD CHAIR | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202101209349301005_public.xml