Organizations Filed Purposes:
THE FIGHTING FOR KAIDEN FOUNDATION IS A NON-PROFIT ORGANIZATION COMMITTED TO ENHANCING THE LIVES OF THOSE STRUGGLING WITH SPINAL MUSCULAR ATROPHY (SMA). WE STRIVE TO RAISE AWARENESS OF THIS DISEASE ON THE LOCAL, REGIONAL AND NATIONAL LEVELS. OUR FOUNDATION PROVIDES NEED-BASED FINANCIAL SUPPORT TO AFFECTED FAMILIES FOR EQUIPMENT, TRAVEL, AND IN THE FUTURE, LIFE CHANGING MEDICATIONS. WE UNDERSTAND THE VALUE OF AWARENESS AND PEER SUPPORT AND ORGANIZE SUPPORT GROUPS AND INFORMATION FOR SMA AFFECTED FAMILIES IN OUR AREA.
PROVIDE MEDICAL EQUIPMENT AND SUPPLIES TO ASSIST FAMILIES WITH THE COSTS NOT COVERED BY MEDICAL INSURANCE.
ESTABLISHED A PARTNERSHIP WITH AVEXIS PHARMACEUTICALS TO FURTHER AWARENESS TO THE SMA COMMUNITY REGARDING UPCOMING DRUG TRIALS AND FDA APPROVALS
CREATED A NATIONAL CONFERENCE SCHOLARSHIP PROGRAM FOR NEWLY DIAGNOSED FAMILIES SO THEY CAN GAIN VALUABLE INFORMATION AND SUPPORT.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| George Ulmer | TREASURER | 5 | $0 |
| Joann Loos | PRESIDENT | 5 | $0 |
| Diane Hulson | VICE PRESIDE | 5 | $0 |
| Kelly Eakin | MARKETING DI | 10 | $0 |
| Kristina Defazio | EXECUTIVE DI | 15 | $0 |
| Katrina Cooley | SECRETARY | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202130949349300203_public.xml