Organizations Filed Purposes:
TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES.
WE IMPROVE AND SAVE LIVES THROUGH COMMUNITY SERVICES, EDUCATION, ACCESS TO CARE, AND RESEARCH.
ADVOCACY FOR INDIVIDUALS, FAMILIES AND COMMUNITIES - THE FOUNDATION IS ON THE FRONT LINES HELPING ENSURE ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURES, AND THEIR FAMILIES AND COMMUNITIES, RECEIVE THE BEST POSSIBLE SERVICES AND CARE. THE FOUNDATION DEVELOPS NATIONWIDE PROGRAMS AVAILABLE THROUGH ITS NETWORK OF NEARLY 50 LOCAL EPILEPSY FOUNDATIONS AND ALSO ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND ADULTS IN IMPROVING THEIR QUALITY OF LIFE. THE FOUNDATION ALSO HAS PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IN IMPROVING OVERALL WELLNESS. THE PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS.
PUBLIC HEALTH, EDUCATION AND AWARENESS - THE FOUNDATION LEADS THE FIGHT TO END EPILEPSY BY CREATING AWARENESS THROUGH NATIONAL MEDIA OUTREACH WITH TRADITIONAL AND DIGITAL CHANNELS INCLUDING EPILEPSY.COM AND SOCIAL MEDIA AND THROUGH THE DIRECT MAIL PROGRAM WHICH SERVES THE DUAL PURPOSE OF RAISING FUNDS FOR THE ORGANIZATION AND INCREASING AWARENESS OF THEFOUNDATION'S CAUSE. THE FOUNDATION EDUCATES ABOUT SEIZURE RECOGNITION AND FIRST AID, EMPHASIZING THE IMPORTANCE OF EARLY AND ACCURATE DIAGNOSIS, WHEN TO SEEK SPECIALTY CARE, AND PURSUIT OF WELLNESS AND BEST QUALITY OF LIFE. THE FOUNDATION EDUCATES THROUGH ENGAGEMENT WITHMEDIA SOURCES, PARTNERSHIPS WITH OTHER NON-PROFIT, PROFESSIONAL AND GOVERNMENT ORGANIZATIONS. THE FOUNDATION'S EPILEPSY LEARNING HEALTHCARE SYSTEM NETWORK IS A PUBLIC HEALTH INITIATIVE TO DRIVE QUALITY IMPROVEMENT AND HEALTH SERVICES RESEARCH TO IMPROVE OUTCOMES FOR PEOPLE WITH EPILEPSY.
RESEARCH, INNOVATION, AND NEW THERAPIES - BRINGING INNOVATIVE NEW THERAPIES IN A TIMEFRAME THAT MATTERS IS A DRIVING FORCE AND KEY STRATEGIC PRIORITY FOR THE FOUNDATION. THROUGH THE EPILEPSY THERAPY PROJECT, THE FOUNDATION ACCELERATES DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF THE EPILEPSIES, AND ADDRESSES GAPS IN THE RESEARCH AND COMMERCIALIZATION CONTINUUM. OTHER KEY INITIATIVES INCLUDE RESEARCH TO ERADICATE SUDEP, ANALYSIS OF DATA FROM PATIENT REGISTRIES FOR COMMON AND RARE FORMS OF EPILEPSY IN THE HUMAN EPILEPSY PROJECT AND THE RARE EPILEPSY NETWORK, SUPPORT FOR PROMISING AND MERITORIOUS RESEARCH GRANT AND FELLOWSHIP APPLICATIONS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Philip Gattone | CEO (TO DEC '19) | 35 | $312,845 |
| Ellen K Hobby | CHIEF OPERATING OFFICER/VP | 35 | $210,505 |
| Geoffrey Delizzio | CHIEF DEVELOPMENT OFFICER | 35 | $199,744 |
| Brandy E Fureman | CHIEF OUTCOMES OFFICER | 35 | $198,188 |
| Laura Weidner | VP GOVERNMENT RELATIONS & ADVOCACY | 35 | $167,776 |
| Steven Owens | VP PROGRAMS | 35 | $164,821 |
| Kenneth A Lowenberg | VP COMMUNICATIONS | 35 | $159,170 |
| Susan Pietsch-Eschuta | VP MARKETING | 35 | $154,828 |
| Diane E Rubinstein | CHIEF FINANCIAL OFFICER | 35 | $148,786 |
| Jonathan E Scheinman | SR DIRECTOR OF COMMUNITY D | 35 | $139,124 |
| Vicki Kopplin | CHAPTERS | 35 | $135,416 |
| Gail Pundsack | VP FIELD OPERATIONS | 35 | $133,989 |
| Geoffrey Hoyt | SNR DIRECTOR OF MAJOR GIFTS | 35 | $130,218 |
| Donald Nose | DEVELOPMENT | 35 | $118,117 |
| Steve Wulchin | DIRECTOR | 1 | $0 |
| Robert Wechsler | DIRECTOR | 1 | $0 |
| Rebekah Walker | DIRECTOR (FROM SEP '19) | 1 | $0 |
| Steven Schachter | DIRECTOR | 1 | $0 |
| Jeffrey Parent | DIRECTOR | 1 | $0 |
| Daniel Moore | DIRECTOR | 1 | $0 |
| May J Liang | DIRECTOR | 1 | $0 |
| Adam Kaller | DIRECTOR (FROM SEP '19) | 1 | $0 |
| Cynthia Hudson | DIRECTOR | 1 | $0 |
| Roger Heldman | TREASURER (TO APR '20)/DIRECTOR | 1 | $0 |
| David Hawk | DIRECTOR (FROM DEC '19) | 1 | $0 |
| Rick Harrison | DIRECTOR | 1 | $0 |
| Stephanie Fokas | DIRECTOR | 1 | $0 |
| Frank Fischer | DIRECTOR | 1 | $0 |
| Tony Coelho | DIRECTOR | 1 | $0 |
| Camila Coelho | DIRECTOR (FROM MAR '20) | 1 | $0 |
| Aly Clift | DIRECTOR | 1 | $0 |
| Mark Borman | DIRECTOR | 1 | $0 |
| Steven Baum | DIRECTOR | 1 | $0 |
| Geoffrey Pope | SECRETARY | 1 | $0 |
| Robert W Smith | INTERIM CEO (TO APR '20)/TREASURER | 1 | $0 |
| Brooke Gordon | VICE CHAIR | 1 | $0 |
| Bradley Boyer | CHAIR | 1 | $0 |
| Laura Thrall | CEO (FROM APR '20) | 35 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023219349308517_public.xml