Organizations Filed Purposes:
HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT.
EDUCATION - THE GOAL OF EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH ITS SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.
PUBLIC INFORMATION - THE GOAL OF PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND MEDIA. THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD EVERY OTHER YEAR.
THE RESEARCH PROGRAM IS SUPPORTIVE IN FUNDING RESEARCH FOR THE UNDERSTANDING OF THE MECHANISM OF HHT DISEASE, NOVEL THERAPEUTIC APPROACHES TO TREATMENT AND MANAGEMENT, AND TRANSLATIONAL RESEARCH LEADING TO MULTI-CENTER TRIALS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Marianne Clancy | EXECUTIVE DIRECTOR | 40 | $140,743 |
| John Dunn | SECRETARY | 1 | $0 |
| Marc Topaz | TREASURER | 1 | $0 |
| Benjamin Holt | VICE PRESIDENT | 1 | $0 |
| Sara Palmer Phd | PRESIDENT | 1 | $0 |
| Dennis Routledge | MEMBER EMERITUS | 1 | $0 |
| Robert Berkman | MEMBER EMERITUS | 1 | $0 |
| Cheryl Wilson | MEMBER | 1 | $0 |
| Karen Silber Weissel Phd | MEMBER | 1 | $0 |
| Dennis Sprecher | MEMBER | 1 | $0 |
| Scott Olitsky Md | MEMBER | 1 | $0 |
| Gary Mckee Md | MEMBER | 1 | $0 |
| Marijo Mccune | MEMBER | 1 | $0 |
| Jim Lapides | MEMBER | 1 | $0 |
| Charles Ingardia Md | MEMBER | 1 | $0 |
| Christopher Gibson Phd | MEMBER | 1 | $0 |
| Alyson Abbott Conger | MEMBER | 1 | $0 |
| Harry Chapman | MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003219349316085_public.xml