NATIONAL COALITION FOR CANCER SURVIVORSHIP
8455 COLESVILLE ROAD NO 930, SILVER SPRING, MD 20910 www.canceradvocacy.org

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Organizations Filed Purposes: TO ADVOCATE FOR QUALITY CANCER CARE FOR ALL PEOPLE TOUCHED BY CANCER.

ADVOCATES FOR CHANGES IN HOW THE NATION RESEARCHES,REGULATES,FINANCES & DELIVERS QUALITY CANCER CARE.

PUBLIC POLICY NCCS ADVOCATES FOR PUBLIC POLICY CHANGE TO ENSURE CANCER SURVIVORS HAVE ACCESS TO HIGH-QUALITY, EVIDENCE-BASED CANCER CARE. NCCS REPRESENTS THE PERSPECTIVE OF CANCER SURVIVORS IN PUBLIC POLICY DISCUSSIONS. WE CONVENE THOUGHT LEADERS, POLICYMAKERS, ADVOCATES, AND THE PRIVATE SECTOR AT THE NCCS CANCER POLICY ROUNDTABLES TO EXCHANGE IDEAS ABOUT THE MOST PRESSING POLICY ISSUES. OUR POLICY EFFORTS FOCUS ON QUALITY CANCER CARE, ACCESS TO CARE, AND HEALTH EQUITY.

CANCER POLICY & ADVOCACY TEAM (CPAT):THE CANCER POLICY & ADVOCACY TEAM (CPAT) ENGAGES MORE THAN 550 CANCER SURVIVORS AND CAREGIVERS FROM NEARLY ALL 50 STATES TO LEARN ABOUT PUBLIC POLICY ISSUES THAT AFFECT QUALITY CANCER CARE. CPAT PROVIDES MEMBERS TOOLS AND TRAINING TO BECOME EFFECTIVE ADVOCATES. THE PROGRAM INCLUDES AN IN-PERSON SYMPOSIUM, WITH TRAINING ON POLICY ISSUES AND ADVOCACY SKILLS, AND HILL DAY, AS WELL AS A MONTHLY NEWSLETTER, WEBINAR SERIES, MEMBERS-ONLY FACEBOOK GROUP, AND OTHER EDUCATIONAL MATERIALS. NCCS MATCHES CPAT MEMBERS WITH ADVOCACY OPPORTUNITIES, INCLUDING SPEAKING ENGAGEMENTS, MEDIA INTERVIEWS, RESEARCH REVIEW, AND PARTICIPATION ON COMMITTEES AND PROJECTS.THE GOAL OF THE PROGRAM IS TO TRAIN, USING A VARIETY OF METHODS, PATIENT ADVOCATES ON THE MOST PRESSING POLICY ISSUES FACING QUALITY CANCER CARE IN AN EFFORT TO FACILITATE THEIR ENGAGEMENT IN PUBLIC POLICY ADVOCACY TO ENSURE THE BEST POSSIBLE CARE. THE WEBINARS, E-NEWSLETTERS, ONLINE FORUM, AND IN-PERSON CONFERENCES FOR CPAT MEMBERS OFFER ADVOCATES DIFFERENT WAYS TO LEARN AND TO DISCUSS CURRENT ISSUES, PROGRAMS, AND POLICIES THAT AFFECT THE CANCER COMMUNITY AND TO TAKE ACTION AS APPROPRIATE. THE INTERACTIVE PROGRAM FOCUSES ON THOSE POLICY AND ADVOCACY ISSUES THAT AFFECT THE NEEDS OF CANCER SURVIVORS FROM DIAGNOSIS TO TREATMENT AND THROUGH LONG-TERM SURVIVORSHIP CARE AND WILL CONSIDER POLICY ACTIVITIES THAT MAY FOSTER REFORMS TO MAKE THE CANCER CARE SYSTEM MORE RESPONSIVE TO SURVIVORS' NEEDS. DESPITE IMPRESSIVE ACHIEVEMENTS IN CANCER RESEARCH AND THERAPY DEVELOPMENT, THE CANCER CARE EXPERIENCE REMAINS A DIFFICULT ONE IN MANY WAYS. CANCER SURVIVORS REQUIRE MORE THAN CUTTING-EDGE THERAPIES TO ACHIEVE OPTIMAL OUTCOMES. IN ORDER TO RECEIVE THE MOST APPROPRIATE CARE ACROSS THE CONTINUUM OF CANCER CARE, CANCER SURVIVORS REQUIRE A SHARED AND INFORMED DECISION-MAKING PROCESS ON DIAGNOSIS AND TREATMENT OPTIONS, PSYCHOSOCIAL SUPPORT, EARLY INCORPORATION OF PALLIATIVE CARE, AND, WHEN APPROPRIATE, TIMELY REFERRAL TO HOSPICE. SURVIVORS ALSO NEED A PLAN FOR MONITORING AND FOLLOW-UP CARE AFTER ACTIVE TREATMENT.

ELEVATING SURVIVORSHIP:ELEVATING SURVIVORSHIP IS A PATIENT- AND ADVOCATE-LED INITIATIVE TO IMPROVE SURVIVORSHIP CARE IN THE UNITED STATES. LAUNCHED IN 2018, ELEVATING SURVIVORSHIP (ELEVATE) WAS CREATED TO IDENTIFY GAPS IN SURVIVORSHIP CARE/SERVICES AND EMPLOY CANCER SURVIVOR ADVOCATES (AMBASSADORS) TO FILL THOSE GAPS IN THEIR LOCAL COMMUNITY. ELEVATE IS UNIQUE IN ITS DEPLOYMENT OF PATIENT LEADERS, PARTNERING WITH PROVIDERS AND OTHER COMMUNITY MEMBERS, TO IMPROVE THE DELIVERY OF, AND EDUCATION ABOUT SURVIVORSHIP CARE.

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