Organizations Filed Purposes:
THE CORPORATION IS ORGANIZED AND SHALL BE OPERATED EXCLUSIVELY FOR THE BENEFIT OF, TO PERFORM THE FUNCTIONS OF, OR TO CARRY OUT THE PURPOSES OF PULMONARY HYPERTENSION ASSOCIATION, INC. ("PHA").
PULMONARY HYPERTENSION ASSOCIATION REGISTRY (PHAR): ACCREDITED PHCC'S HAVE AN OPPORTUNITY TO PARTICIPATE IN PHAR AS BOTH A QUALITY IMPROVEMENT PROCESS AND A RESEARCH ACTIVITY. A PATIENT REGISTRY IS AN ORGANIZED SYSTEM THAT COLLECTS DATA TO EVALUATE CERTAIN OUTCOMES FOR A POPULATION OF PEOPLE WITH A MEDICAL CONDITION AND IS A USEFUL TOOL FOR LEARNING MORE ABOUT RARE DISEASES SUCH AS PH. PHAR COLLECTS DATA FROM WHO GROUP 1 PH (PULMONARY ARTERIAL HYPERTENSIONPAH) AND WHO GROUP 4 PH (CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSIONCTEPH) WHO ARE STARTING EVALUATION AND/OR TREATMENT AT AN ACCREDITED PHCC. OVER TIME, PHAR WILL HELP RESEARCHERS EVALUATE TRENDS AND PRACTICE PATTERNS TO DETERMINE WHICH TREATMENTS WORK BEST. AT THE END OF 2019, THERE WERE 48 CENTERS PARTICIPATING AND 1,178 PATIENTS ENROLLED IN PHAR.
PULMONARY HYPERTENSION CARE CENTERS (PHCC ACCREDITATION): THE PULMONARY HYPERTENSION ASSOCIATION (PHA) ESTABLISHED ITS PH CARE CENTERS (PHCC) PROGRAM TO ACCREDIT CENTERS NATIONWIDE WITH SPECIAL EXPERTISE IN TREATING PULMONARY HYPERTENSION (PH), PARTICULARLY PULMONARY ARTERIAL HYPERTENSION (PAH), TO RAISE THE OVERALL QUALITY OF CARE AND OUTCOMES IN PATIENTS WITH THIS INCURABLE, PROGRESSIVE, LIFE-THREATENING RARE DISEASE. ESTABLISHED IN 2011, THE PHCC PROGRAM HAS ACCREDITED TWO TYPES OF CENTERS. CENTERS OF COMPREHENSIVE CARE (CCC) AND REGIONAL CLINICAL PROGRAMS (RCP). BOTH PHCC-ACCREDITED CCC'S AND RCP'S HAVE DEMONSTRATED A COMMITMENT TO PROVIDING EXPERT-LEVEL CARE BASED ON THE PULMONARY HYPERTENSION DIAGNOSIS AND TREATMENT CONSENSUS GUIDELINES. AT THE END OF 2019, THERE WERE 77 ACCREDITED CENTERS THAT COVERED AN ESTIMATED 17,000 PATIENTS NATIONWIDE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Michael Gray | SENIOR DIRECTOR, MEDICAL SERVICES | 13 | $0 |
| Torgrim Forberg | VICE PRESIDENT OF FINANCE | 3 | $0 |
| Azalea Candelaria | VP OF DEVELOPMENT | 3 | $0 |
| Brad A Wong | PRESIDENT & CEO | 3 | $0 |
| Delphine Yung | DIRECTOR | 3 | $0 |
| Roger Towle | DIRECTOR | 3 | $0 |
| Diane Ramirez | DIRECTOR | 3 | $0 |
| Karen Fagan | DIRECTOR | 3 | $0 |
| Colleen Brunetti | DIRECTOR | 3 | $0 |
| Elizabeth Miklos | SECRETARY | 3 | $0 |
| William Hoff | TREASURER | 3 | $0 |
| Joel Wirth Md | CHAIR-ELECT | 3 | $0 |
| Anton Lahnston | CHAIR | 3 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033079349301443_public.xml